Apr28

Home Again, Home Again, Jiggety Jig!

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This small, cute person was VERY excited when she heard she was coming home today….

And look who is relaxing in her princess bed watching some Larry Boy….

On Monday we take her for a physical therapy evaluation to see if she needs to receive in-patient physical therapy at a PT Baylor facility. I am hoping we can arrange at-home  therapy for her so we don’t all have to be separated again, especially between chemo treatments. Her counts will be dropping soon so we will probably lay low for a while while she is immuno-compromised.  It’s so nice to have everyone in the same place and we are looking forward to a special time with our girl!

Savoring every moment,   ~Amey

Filed under Uncategorized | 26 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

26 responses »

  4. Oh these pictures are so cute!! So happy to see you all together again, she looks content at home in her own bed. Will pray for a smoothe recovery while her numbers take a roller coaster ride. Will continue praying and fighting right along with you Phoebe, we love you!!

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  5. Wow!!! What a huge difference this time… and another trip home!!! God has opened the windows of heaven and poured out such a blessing… who can take His love and mercy all in?
    Enjoy yourselves, dear precious family.

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  6. So very happy to hear she’s back home again and she looks so happy in her princess bed! I love it! Bless you all and continuing our prayers for all of you. Loved the pics of the boys fishing too….they are so cute 🙂

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  11. That is so wonderful!! I know it was very exciting to her (and ALL of you) to have her back home after such a short time away this time. Praying it keeps up like that !! 🙂 Enjoy you “laying low” time. That can be nice too I am sure after all the running you guys have during hospital days. 🙂 Lots of love!!

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  13. Fabulous news for ALL of you! I’m dancing a jig with you, too. I continue to pray for this sweet angel for strength & health & happy days!

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  14. That one small cute person wasn’t the only one who was VERY happy to hear she was getting to come home today!! I imagine there were 3 bigger-small and 2 big people who were doing the happy dance!! I’m so happy for her/you I’m doing my own happy dance for all of you, and I bet there are lots of dances going on out there in the world, too!!! We’ve got the joy, joy, joy, joy down in our hearts today! Love you guys!

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  16. Yay!!!! Oh my goodness what a precious picture! LOVE that smile and love knowing you guys are all together. Our prayers continue and we are so thankful for how well she is handling treatments.

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  20. So excited for your family and Phoebe!! She is looking so good and is showing so much excitement in the fact she is home with her family!! Praise God she has been doing good so far and being able to stay there with you all! God answers prayers for sure!! Still praying for her and your whole family!! God bless!

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  24. We are thrilled that she is home again and….watching Larry Boy! My kids are requesting another video of her. They like to watch the old ones still. She is a constant in our heart and prayers and we love each one of you. May His strength be yours and peace in this rollercoaster of life and emotions. He is our Peace!

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  25. Sweet girl… SO happy you are back home!!! You have the sweetest little face… I just adore you and I don’t even know you! I pray that you will continue to do well so you and your wonderful family can be together!!! God Bless you sweet one!

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