Apr27

Another Trip Home?!

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It looks like Phoebe will be coming home tomorrow if she continues to handle her chemo like a champ! She has done great so far, with only a small amount of nausea and some low magnesium levels. If she looks good tomorrow and her levels are still in check, she will get to come home again! I can hardly believe it. Apparently THIS is what chemo is SUPPOSED to be like. Who knew?

In other news, the boys took a field-trip today to the fresh-water fisheries in Athens, TX (where Deacon was born) and had a wonderful time with their Great-Grandparents to boot! Here are a few pics of their adventure….

So, here’s to a great night for the Phoebster and another opportunity to spend life together as a family at home! Thank you all for praying her through and staying with us!

~Amey

Filed under Uncategorized | 17 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

17 responses »

  3. What great photos of the boys! They sure look happy, and it probably did them good to have some time with their great-grandparents!

    It sounds like God has truly blessed Phoebe during this round of chemo, so I hope her homecoming is a good one – and a “normal” one. Praise God for all He is doing, in her life and in yours.

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  4. This makes my day (we just got up)! I will pray hard that the Phoebster will say good-bye soon! Seems like you will have fish for dinner! Go for it brothers of little styling queen!
    Good to see your family getting new treasureable memories how life is outside the clinic! We are so glad for you and pray for a smooth time!
    Chris

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  5. I’m SO happy she’s tolerating the chemotherapy like she’s supposed to! Go Phoebe!!! Here’s to another week with your whole family together as it should be! xxx

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  7. Oh! How wonderful! The kids and I have been praying that this round would be smoother than the last and that she’d get to go home again soon. Thank you God! Let me know if there’s anything else I can do for you.

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  8. This is so wonderful to read this morning. Still praying daily for Phoebe and every member of the family. Praise God!

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  9. Wonderful!! You fight Phoebe and we will keep praying and praying. Thank you Father, please keep Phoebe healthy and let this cancer be gone.

    These are great pictures of your boys. Looks like they had a blast.

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  12. This sounds great! Thank you, God, for sustaining her little body through such harsh treatments!
    So happy for you all!!!

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  16. Luke laughed at the wording. Deacon was born in the fisheries. How do you hid the gills? Seriously, so happy that God has answered our prayers so mightily. So many things we prayed for at the beginning that you no longer mention. So very thankful for all He has done for “The Phoebster.” Just so glad she is doing so well.

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  17. PRAISE THE LORD! Miss Phoebe fair has touched my heart so deeply as have you and your whole precious family. God bless you dear ones. Much love and prayer from me and all the many lives you are touching. .

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