Tonight, as I write this, I am at Parkland hospital watching Deacon sleep. When I look out the window I can see Phoebe’s room across the street at Children’s Medical Center.
Some days are too unreal to be real. This was one of those days. Ben (9) woke me up at 6 am complaining that his “chigger bites” (as we suspected yesterday) were really bothering him and that his head hurt. I took his temp, gave him some Tylenol, applied Chigger-X and went back to sleep. Half way through our school morning I found him on the couch crying and complaining that he was feeling worse. Since Ben has an underlying blood disorder called Auto-immune Hemolytic Anemia, I didn’t waste any time taking him to the ER. He’d had a break out like this when he was four that ended up being a systemic staph infection that had to be treated with antibiotics and I knew that if his hemoglobin level was too low he would need a blood transfusion.
Just after getting checked in to the ER at Children’s (where Phoebe was just a few floors above) I got a phone call from Jocelyn, our friend who is helping us out right now. She had been doing math with Averic and heating up some water for mac n cheese when the microwave beeped. We have had to pre-heat our water in the microwave lately since our stove isn’t working, and when it beeped Deacon said “Jocelyn, the water is ready.” To which Jocelyn replied ” Okay Deacon, don’t touch it, I’ll be there in a second.” But Deacon, wanting to be helpful, scooted his little stool up to the microwave and grabbed the glass bowl of boiling water and pulled it out, spilling it all down his cheek, neck, chest and arms. She called me, then called an ambulance and as I was being taken to an ER room with Ben, Deacon was being taken to the ER at Parkland Hospital, right next door to Children’s where we were. It felt like a bad dream. Too unreal to be real.
We made a switch around of people and family members, and I met Nathan and my Mom in the ER at Parkland right next door after my neighbor Tessa took me over. This is what I saw when I walked in….
He had Morphine and was being sweet, I held back my tears so I wouldn’t scare him. Later he was taken to the scrub tank and Nathan went with him. They said it would be rough, that the first time is the worst, that they would make him as comfortable as possible. I knew I wouldn’t be able to make it through without crying. I am spent with hurting for my children..
Nathan lovingly spared me details, and when I saw Deacon next an hour later, this is what I saw…
He will go to the scrub tank tomorrow and maybe the next day as they see how his burns are doing. Then we will be given wound care instruction and sent home. He will have clinic visits for a while until he is completely healed.
Meanwhile, Phoebelicious was getting fitted for her new boots…
These little casts will help her foot drop and stretch out those muscles so she can learn how to walk again! Yay for walking!
And here is the Phoebster doing her Occupational therapy in her super-she-ro outfit. She had a great day. Phoebe being the child I was least worried about today was a new experience!
I wish I had a picture of Benjamin to share, but I left him in such urgency to get to the ER for Deacon, I felt so bad leaving him. He does not appear to have Staph, but does have a bacterial infection on his skin and is being treated with antibiotics. If it doesn’t improve in 48 hours he will go back. His blood labs were drawn and his hemoglobin looks great, so I am thankful for that. I told Nathan we need to put Averic in a padded room just in case….I can’t believe 3 out of 4 of our children were in the hospital today. What a day.
Thank you to all of you who have been praying for us. Apparently we need it A LOT.