So much to catch up on, where to start?
Round five of Phoebe’s protocol begins tomorrow. This marks the LAST ROUND in the induction phase ie: the really yucky part! After this round Phoebe goes on “maintenance” and although I don’t understand exactly what that means, I know that it means that this is where things are supposed to get better. I’m hoping it means more uneventful stays at home and a more predictable life with a girl who feels good! This past week with Phoebe home and feeling good has been wonderful.
Today we wanted to do something special that Phoebe would enjoy since she goes in-patient tomorrow, so we decided to take a trip to the farm in Waco @ http://worldhungerrelief.org where we lived last year during our agriculture training. We moved out of our farm apartment December 17 and fifteen days later Phoebe was diagnosed with her brain tumor.
The World Hunger Relief farm is the backdrop to all my memories of a healthy Phoebe, so I wasn’t sure how I would feel about being back. In my mind’s eye I see her scooting around on her pink tricycle there, blonde curls aglow in the sunshine. I see her on Nathan’s shoulders as he stands by the fence throwing dinner left-overs to the pigs. I see Averic pulling her around in her red wagon while she squeals with delight. I imagine her bare little feet on the gravel road. The farm is the last place life was normal. And today it was perfect, being there. We were welcomed back into the fold with open arms and Phoebe relished being loved on by people who are so familiar to her. I could see her spirit swell and all I felt was joy for the moment, not loss for days gone by.
In true farmie form, our farm family prepared an impromptu meal of grass-fed burgers and farm fresh salad and we had sweet fellowship together. The boys found their little friends and took off running; they checked up on the old fort, visited the goats and made themselves at home all over again. It was spectacular to see them in their element, to see them having so much fun. Today was a gift, and Phoebe felt great. It was the perfect exclamation point on a wonderful two weeks at home!
Nathan and I also really enjoyed our weekend away at the home school conference. The workshops this year were particularly relevant to areas where we needed some light in our lives and we came away renewed and with new resolve in several areas. Benjamin met us at the conference for the chess tournament on Saturday and was pleased to win 6th place for his age group. I got to see both of my mother’s on Mother’s Day and enjoyed a lovely lunch out and beautiful flowers from my father-in-law. I could not have asked for a better weekend.
So, here we go with Round 5 tomorrow. Phoebe will have an Echocardiogram then she will receive her intrathecal (spinal) chemotherapy injection and be admitted to the Oncology floor. Tomorrow evening her IV chemo will start and continue over the next four days. This round she will be staying through the weekend so we can get her feeds through her ng tube on a schedule rather than her being on continuous feeds. This will allow her to be detatched from her pump at intervals throughout the day and also give her more of an opportunity to eat table food.
Praying for a smooth round and feeling grateful to God who sustains my girl…..