ER Again…and Readmitted

Standard

Three high fevers in a row sent me back to the ER with Phoebe at 4am this morning. Her white blood cell count is zero and it was a pretty dramatic drop from yesterday which is unusual. We don’t need any more “unusual” around here. She has been readmitted and is being given IV antibiotics. Looks like we’ll be dividing our time between home and hospital yet again. Please pray this is just a blip and that her counts will recover soon and well!

~Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

22 responses »

  1. God bless you all! Am requesting prayers from my pastor and the others in the church that are part of the prayer chain.

  2. Amey, we do indeed pray this is just a blip, as you said. Abba, Father, we again ask you to be with the Fair family as they go through this area. We thank You, Lord, for all you have done and are doing in their lives, and in ours, through their faith and testimony. Bless them all, Father, with continued protection, health, and joy. In Jesus’ name. Amen.

  3. Praying hard for this situation to correct itself quickly, for Phoebe to be able to go home and for all of the Fairs to be healthy. Sending Hugs and Prayers your direction.

  4. Heavenly father we praise you for you are Holy. Father, you know our every circumstance and our situations. We ask for health all over our bodies and those around us.We lift up baby Phoebe. We know you love her more than we can ever love her.. Father, I ask that you use this situations for your glory. May your beauty and grace shine trhough this situation. We know we are blessed because you love us. In the name of jesus we leave it all in your hands knowing that you are a God of love, compassion and great wonders. We declare that Jesus is Lord over our lives and has come that we may have life to the fullest. We exclaim that nailed our sins and diseases to the cross so that we may have eternal and temporal redemption.
    Father I pray for peace that transcends all understanding to come over this beautiful family. May your love surround them. May your guardian angels keep them company day and night. Remove all worry and fear. In the name of Jesus I pray AmEN!

  5. If not for bumpy roads, we would never be able to appreciate the smooth ones. Praying this bump will smooth out quickly. Always in our prayers!

  6. I will definatly keep your family on my prayers! Thanks Amey, for taking time out of ur busy schedule to keep us all posted!

  7. Holding you and your family up in prayer! Just a little blip in the road, but God is with us all the time, and He knows what Phoebe needs!! God bless you, Phoebe, Deacon, and the rest of the family!!

  8. Oh Amey, how our hearts ache over all of this! You need a supernatural amount of resiliance. Praying for you to have peace on every side.

  9. Praying for Phoebe, for you Amey and for all your family. I can/t even imagine how hard all this must be to live with and through. Praying for real and positive intervention by our God on your behalf. Lord God have mercy and do not let the enemy of our souls wreck any more havoc on this precious family. With all my heart I ask your Jesus to intercede, heal and protect the Fair family.

  10. As always, keeping your sweet family in my prayers! I think of you all each and every day and pray for you multiple times a day.
    ((HUGS)) and PRAYERS!
    Kendra from PA

  11. Dear Father God,
    We thank You for hearing our prayers. Tonight we pray for the atypical miracle to continue…please show Yourself strong in Phoebe’s life and in her family…trusting You! In Jesus’ name. Amen.

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