We will not know the nose swab test results until tomorrow, but it appears that Phoebe has a virus. She has typical cold symptoms; runny nose, a little cough, watery eyes and fever. She has been dehydrated and they have doubled her fluid intake so the last two days have been a juggling act with her Diabetes Insipidus. She is a little grouchy and sleepy, but otherwise does well when she is awake.
Tomorrow is day eleven of this chemo cycle and on day 14 her blood counts usually make a reappearance, so we are watching her closely and praying for her immune system to reboot quickly. This round of chemo included a drug called Doxorubicen which is always very hard on her immune system knocking her counts down to zero and causing mucositis, painful sores throughout the lining of her mouth and digestive tract.
Deacon goes in tomorrow to have his Mepoplex foam pad removed and check up on his healing from the burns. His face is looking really good and most of the burned skin has peeled off now. He is very itchy, otherwise it looks like we might be in the clear as far as infection goes. I will update tomorrow after our appointment.
Please pray that Phoebe’s immune system comes back good and strong and quickly so she can fight off this virus without any complications. Thank you all for your kind messages, cards and letters and prayers, we feel very blessed to be surrounded by such a host of loving people.
Praying hard & often!
Praying and fighting for you all!! I hope Deacon does ok with his appt and its not too painful. So many people are praying for you all in Colorado! Think about Phoebe often and am always checking for updates….love to you all
Even we will most likely be not online the next two weeks we keep you with us and will keep praying for the whole family! Hopefully the booting up starts soon! We’re glad that Deacon is doing so well an hope Phoebe is soon over the virus!
Goodnight Amey and the entire Fair family! We are praying for speedy recoveries and a resupply of patience and grace!
Love from Washington State
Prayers for all of you…. Phoebe, you are a fighter… God knows that..and he is going to be with you every step of the way. Prayers for a safe and happy Memorial Day weekend, and Memorial Day! God bless and keep you all! Prayers for wonderful blessings from God and some great test results…and an Immune system reboot that AMAZES the doctors beyond it all!
Father, we cover Phoebe in prayer for protection. Where she is weak He is strong! We praise You Father for seeing her through! And we praise You for Deacon’s healing!
Keeping all of you in my prayers often.
Lord Jesus, let You presence reign in Phoebe’s body and Deacon’s body. Fill them with Your glory for where ever You are no sickness can be. In Jesus’ name, amen.
We are praying every day!
Prayers coming your way. My 4 year old daughter Kyli Taylor was just diagnosed with ALL Leukemia and I will keep Phoebe & Deacon in my prayers.
praying , just so you know. Daily without ceasing but extra much on days like this.
Wow… I just saw your blog. You all must be having such a hard, hard time… I can’t even imagine.
Hi Amey, I’ve been following your story and I’m always humbled by your ability to stay positive. My husband and I have both been praying and will continue to pray for your family.
Prayed that the Phoebster will have a good appetite. Hugs to all.