It’s all I can say over and over again…

Phoebe woke up this morning with an Advanced Neutrophil Count of 3,300!! She STOOD UP THREE TIMES for 10 seconds on her own two feet with only minimal support from hte physical therapist!! She is coming home today!! The mysterious virus never materialized..

AND….SHE MADE IT THROUGH THE FIRST 12 WEEKS Of Induction Phase, ie: the really horrible, nasty part…the part about which we were told “If you can just make it through this first 12 weeks of chemo, life will get much easier…” and she MADE IT!

And she stood up! And the standing feels like victory to me…like a show down with cancer..

And Deacon is healing beautifully and should continue to do so…

And Jesus….

Through these tears of gratitude His name is on my lips…


About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

52 responses »

  1. “Jesus.” Sometimes it’s a plea. Sometimes it’s a song. Sometimes it’s a thank you. Jesus.

  2. I share with you in excitement. God is GOOD!!!! Our prayers are being answered. Love these positive updates and so glad the hardest part is behind you all! Hugs to all, Jana

  3. AMAZING. A typical miracle as usual…My heart and prayers are with your whole family especially your precious little ones. God will keep you strong even when you are weak. With love from the farm in Ohio.

  4. PRAISE THE LORD- for the miracles of endurance, patience, healing and HOPE!
    We are celebrating with the Fair family today.
    Love From Washington State!
    Cheri Perry

  5. Praise the Lord. Victory is what we believed and is what we will continue to believe. Because with Jesus there is nothing that will defeat us. Blessings to all of you. and we are here for you and with with you until the end.

  6. WONDERFUL NEWS! Thank you, GOD for blessing this family! Thank you, GOD, for hearing and answering our prayers for this precious family! Keep your arms around them…and may they continue to ASTOUND the doctors!!!!

  7. Wonderful news, praise God! Phoebe is one tough little lady, she shows that time and time again. Glad to hear she’s feeling better today, and that Deacon is healing well. Thanks for the great news, I hope you have a wonderful weekend with your family!

    C.O.L.E. Prayer Team – http://www.colesfoundation.org

  8. It’s time for some good news! Thank you Father God! Restoration is on the way! And the devil must pay back 7 times what he has stolen from all of you!

  9. Words can not express the Joy in my heart for you all..God continue to bless these faithful angels and thank you for letting me be witness to it all…XXOO all the way around….

  10. Oh Amey!! “Jesus!” That’s all I can say, either! Oh wow your kids are amazing. You know, I think I said once before that my prayer for you and Phoebe is that when hard times come – and they will – you guys will remember this terrible, wonderful time. Crises of faith, of rebellion, of relationship, when they come, will have the same suddenness and anxiety you felt the night you had to drop your part of the planning for The Ziglar Women in order to take Phoebe to the first hospital. You will need every bit of the wonder and joy you feel right now, to keep perspective. And I don’t pretend to speak from$ experience. My girls are 31 and 22, and there is a middle sister in heaven, and there were times when… But congratulations on your milestone, and God be with you. My attention and my prayers continue to be focused on you and precious Phoebe.

  11. I’ve been emotional all day about this post and have come back to it a couple times to re-read and be thankful and share your joy. Standing up… what a girl! We love you!

  12. Praise the Lord!! So happy for you and your family to have made it through this milestone. I cried tears of joy for you at the news of Phoebe standing!

  13. Oh Amey…I am so delighted for you and for Phoebe and for Deacon, and for your whole family! What an amazing God we serve!!! He has been so faithful in answering your prayers, and it’s so exciting to see how He has worked in the lives of those around you as well, as they witness His miracles.

    I hope that the rest of the this journey continues on a positive path. I continue to hold you and your family in my prayers. Special praise to all the amazing people at the hospital who have been there for your family…all the doctors and nurses and therapists and technicians…they all have had a role to play in getting Phoebe (and Deacon) to where they are at.

    I’m delighted to have read this good news. I have no doubt the good news will continue.

    Pamela in Calgary, AB

  14. Praise the Lord, all ye servants of the Lord. Bless His Holy name and forget none of His benefits. That was the most wonderful post to get to read today. Praise God, praise God, praise God. “And she stood up! And the standing feels like victory to me…like a show down with cancer..” You made it indeed. Well done, good and faithful servant of the Lord. Well done for your perseverance….I could cry and dance and sing all at the same time!!!!

  15. Please don’t stop writing Amey. Whether it’s 1 line or 50….don’t stop telling us about the ways that our precious Jesus is holding you and your family. We are reading. We are being transformed. We are rekindling a love for our Saviour because of His great faithfulness, tenderness, and mercy. On the good days and the bad…keep writing.

  16. People who you have never met, but have been praying faithfully for your little girl and your family are rejoicing with you tonight. God is answering our prayers and it is very encouraging to hear these great reports. May God continue to bless you and keep you.

  17. Praise God!! He is a mighty God that we serve!! Praising God with you and your family and singing his praises!!!

  18. So unbelieveably happy to read this post tonight! I’ve been worried about Phoebe since the last one and I’m so glad to hear about her standing too!! What a trooper and an amazing little girl you have. I think I know where she gets her strength from. Keep it up Phoebe!!! xxx

  19. So amazing!!!! We are all so happy to hear such great news:) Phoebe you are so loved and still have so many of us praying and fighting for you. Such a strong little girl you are and an even strOnger girl you will grow up to be! God I great!!!

  20. Halleluja -praise the Lord! This is coming right from my soul! We are so glad -let’s have a “12-weeks-over-party”!

  21. Thank you Lord Jesus so much, Oh precious Amey I am so glad to read this message. Praise God and we won’t stop praying and thanking Him.

  22. I was scared for all of you. Jesus is good, all the time. Thank you, Jesus! Way to fight, Phoebe! You are one tough cookie.

  23. Jesus, we bless Your name. Thank you for your faithfulness. Please continue to strengthen the Fair family and glorify Your name in and through their lives.

  24. This made me cry, I am so happy to hear all this, LOVE and GRATITUDE are the two strongest words that can be used!!! Thank you Jesus!!!

  25. What a great way to start the holiday weekend. Hope you have a wonderful family time together. God bless your family!

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