Ziglar Women Day

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Yesterday I was unsure if I would make it to the Ziglar Women conference today. Phoebe’s numbers were off in the morning and her heart rate had dropped into the 60’s at one point during the night. But, everything resolved itself by around 9pm last night and was still good this morning, so off we went to the conference! It was nice just to ride n the car with Nathan and spend some time together since we haven’t seen each other except for one day this past week.

This ‘passing like ships in the night’ gets old, but it sure does give our times together a certain sweetness. It was nice to be dressed up and out and about among the ‘land of the living’, talking with women and hearing their stories and listening to how my sweet Phoebe has given them perspective or challenged them in some way. Those comments are always a balm to me because it lets me know that Phoebe’s hardship is not in vain. That is the best gift I receive.

I was happy to see a girlfriend from junior high and briefly catch up with her and to meet a dear woman who drove from Stephenville whose story of brain cancer and loss touched my heart. Kasha, thank you so much for coming and for your thoughtful gift to me. The kindness of strangers never ceases to amaze me.

It was a sweet day of fellowship, visiting with friends and family and seeing women moved toward a closer, more intimate walk with God. And my sweet surprise when I got home….Phoebelicious tucked into her bed at HOME! She got discharged from the hospital while we were at the conference! So, I climbed into bed with my girl and as she grabbed a strand of my hair to twirl as she always does, she said “I love you SOOOO much Mommy!” Music to my ears! Cuddling with Phoebe was the perfect way to end this day. Thank you to all of the women who came out and I hope that you were just as blessed as we were.

~Amey

 

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

8 responses »

  1. Oh precious Sister… This was what I was praying for… Isn’t HE wonderful!! and to end the day with such love, I am in tears God bless you, sweet dreams… He is with you and you have never once been lost for His graceful embrace… I am in tears.. honest.. We were Ywam’ers for 17 years…. I see your heart.. I see your family as homeschoolers… I cannot imagine what you have been under.. we jsut have a daughter with Autism.. but Amey… God is with you guys… I am soo blessed to hear this tonight.. as I pray daily, check this sight daily in case my email misses one of of your emails…

  2. Sometimes the gift and kindness of strangers has been the best healing balm I have ever encountered. Your bravery of sharing this difficult journey gives me so courage in the issues I see as challenges in my life. I pray God continues to bless you with miracles, both in health and in your heart. Surrounding your family in prayers for God’s healing grace and peace.

  3. HI PHOEBE AND FAMILY
    I;M SO HAPPY TONIGHT THAT YOU COULD SNUGGLE WITH YOUR PRECIOUS DAUGHTER
    AND HAD A BLESSED AND COZY NIGHT.
    I PRAY FOR YOU ALL EVERY NIGHT AND MY HEART IS HAPPY TONIGHT AFTER GETTING UPDATED.
    THE LORD BLESS YOU ALL – WE LOVE YOU – WE CARE.

    SUZANNE SMYCZYNSKI 9 I HAVE A DAUGHTER WITH SPINA BIFIDA)

  4. So happy that you got to attend the conference. You deserved this day and the “icing on the cake” was reading that Phoebe was discharged from the hospital. God is Good all of the time….

    Be Blessed today. Sunny

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