See What I can Do!

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This is a BIG GIANT EXCITING thing for Phoebe to be doing!! She is making such good progress the longer she is off the Vincristine and doing physical therapy. The next step is getting her to crawl and then WALKING! I am so proud of my girl…and notice how great Deacon’s burns are healing up!

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

28 responses »

  1. Woooohooooooo!!! Way to go Phoebe! I love seeing her smile, be ACTIVE, and talkative. I’m getting up! I love it. I super love it. Progress is so wonderful, so good. Keep up the great work Phoebe, Amey, and Nathan!!

  2. Yay ….. Wonderful progress …. A reason for celebration! Sending hugs & prayers for more reasons to celebrate in the near future!

  3. Love hearing her talking! She’s such a happy little girl even with all she’s been through. This big step is so exciting for all to see! Way to go Phoebe!! Deacon is adorable too and his scars are healing nicely. I can hardly wait to see her crawling and walking too, don’t think it’ll be too much longer. Hugs to you all!

  4. They both look great. Also good to hear both Nathan and your voices- oh how great it would be to see you all in person! Thanks for the video update.

  5. Theres nothing else to say than “thank you Jesus”.
    Your children are so sweet and I had to start to cry a bit how proud both were! We are super glad that it’s going well and even I am not posting as before we keep following and praying! Bless you Fair Family and keep on Phoebe, can’t expect seeing you jump on the trampolin!
    Chris

  6. This one is a triple WOWER!!! Today’s my birthday and this is the best gift l will receive.
    I love Phoebe and the Fair family (it just goes along with loving your Mom and Dad, Cindy, Katherine, Elizabeth, Tom and his family, and Aunt Jean and Uncle Zig!)
    Of course my Tom and l will continue pray for all of you. With my love l’m sending Mamaw Abernathy and Aunt Betty hugs and the famous giggles that come with thugs -oops -the hugs!
    Decided to leave my *oops* in the message –
    Maybe it’s worth a giggle or two?!

  7. Super exciting! Way to go Phoebes. We were just praying last Tuesday specifically at AWAM camp that she would be able to walk and this is the beginning of that! Thank you Jesus!

  8. How very exciting!! Should give the the next breath of fresh air to keep going! You guys are amazing us with how you’ve been hanging in there – Thank you God for your grace that is more than sufficient and peace that passes all understanding!!

  9. Well, that made my morning! Phoebe is moving so well, I have no doubt she will be walking again very soon. And Deacon looks amazing, praise God that he has recovered so well from his burns. Thanks for sharing that.

  10. I made it through Phoebe dry eyed and praising Jesus – but Deacon brought me to tears. His scars are so miraculously healed! Our God is amazing, and so are your children!

  11. Thanks for sharing the sweet, sweet pictures of Phoebe and Deacon! So very happy for you all, to see healing in them both, God bless your whole family,
    Kay

  12. so wonderful to see this…..may God continue to heal and make strong precious little Phoebe and your beautiful family…..

  13. watching this absolutely delighted our hearts tonight! The kids say “good job, Phoebe!” She is so amazing to work so hard and never give up. You are all inspiring! I loved hearing your voices and seeing Deacon participate in the fun too! Love you.

  14. So excited to see Phoebe doing this feat! I pray someday I am able to meet this miracle child of God. She is truly and inspiration that has touched my heart. It is possible to love a child you have never met. And I love your little girl. I am so glad that Deacon is healing nicely from the burns. Your family continues to be in my prayers. God bless you and your ministry Amey. Donna Brooks, breast cancer survivor.

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