Quick Update


Phoebe Update:
Phoebe spiked a high fever at 2am this morning and we had to take her in to get intravenous antibiotics. When we got to the ER we learned that Phoebe’s hemoglobin and platelets were very low and her ANC (immune system) was almost at zero.

She received a platelet infusion in the ER, and then they transferred her up to the Hematology/Oncology floor where she received a unit of blood (Thanks to all who have donated in Phoebe’s name). After she received her blood, she started to perk up and even had enough energy for a PT session.

Phoebe will remain in the hospital until her immune system comes back in four to five days.

Boys Update:
Deacon is starting to get over his virus, while Ben is in the throes of it and Averic has just started the beginning stages of the virus. It’s not a particularly nasty virus but enough to necessitate separating them from Phoebe. We are hoping by the time Phoebe is discharged next week, everyone will be well enough and we will be reunited at last.

As always thank you from the bottom of our hearts for your prayers, comments and support. I can’t tell you what it means to know that we are not in this alone.


Phoebe snuggling with daddy as she recovers from a rough 12 hours

Phoebe snuggling with daddy as she recovers from a rough 12 hours

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

21 responses »

  1. So glad to hear that Phoebe is on the uphill battle again! Thanks for keeping us posted on everyone too Nathan and I love the picture of you and her! She’s getting her hair back! Poor thing, she’s been through so much and so have all of you but your strength and wisdom with your kids just amazes me……you and Amey are my heroes! God bless all of you! Hang in there, lots of prayers going out to you and your family 🙂

  2. Love love love you Phoebe!!! So glad she’s ok. Thanks for the update dad, praying for a weeks recovery for you all to be together again.

  3. Praise God!! Starting praying again this morning. From friends in Hawaii who love and are praying for Phoebe and your entire family. God bless.

  4. Glad she has her Daddy to snuggle with today and that the boys have there Mama when there a little under the weather. Your amazing parents and were even before this all unfolded. Glad to call you friends! Praying Phoebe’s system starts up again in the next few days and for endurance for you and Amey.

  5. So glad to hear that Phoebe is doing better. Very glad to hear that the virus the boys are suffering from is a mild one and hoping you will all be back together soon!! As always, keeping all of you in our prayers.

  6. Nathan, you are NEVER alone in this challenge! We are always here with you, praying and praying! Glad to hear Phoebe is feeling better and that the boys are getting over their virus.

  7. You both look so tired Nathan. Oh, only the Lord knows all you are going through, your constant struggles and joys. We are praying for you constantly! We love you!

  8. Awww, I love the picture and seeing her hair coming back even for a short time. We are praying for all of you for health, healing and strength.

  9. Your family is in my prayers. My two yo(3 yo this Sunday) prays for “Phoebe to get better” during every prayer, whether at the dinner table or at bed time….she is always thinking of your sweet girl. We look at her pictures everyday and love the videos. Phoebe is one very special girl and she has the most wonderful family. We love you Phoebe, praying for you!

  10. Praying every single day for all of you. Find comfort in the warm embrace of the Lord Nathan, He is with all of you, each and every moment.

  11. Praying for all of you , knowing that God is the Healer…Isaiah 26:3 I will keep thee in perfect peace,who’s mind is stead upon thee, because you trust in me…..trusting with you and knowing His word is truth….

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