2 Nights, No Sleep

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Phoebe is still admitted, but has had no recurrence of fever. After blood and platelet infusions, she is doing much better. Our biggest concern is she has not slept in the last three days or two nights for more than 20 or 30 minutes at a time. Please pray that she gets some good rest tonight.

Please be thinking of Amey as well, she has caught what the boys were sick with. Not seeing Phoebe for almost a week has taken its toll and it looks like it will be at least a few more days until she will be able to see Phoebe again.

-Nathan

Phoebe received a barbie from a sweet neighbor today, and I got a really good hamburger. I don't know which one of us was more greatful!

Phoebe received a barbie from a sweet neighbor today, and I got a really good hamburger. I don’t know which one of us was more greatful!

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

7 responses »

  1. Bless your hearts! Prayers for Amey to get well, and stay well, and for the boys to stay well… prayers for Dad, and prayers for your precious Phoebe! I know it has to be hard on all of you… Prayers for everybody to be together again…and for Phoebe to get some rest!

  2. we are praying for you all, our dear friends… for sleep and health and for all being together at home again. Love, love!

  3. Nathan, glad you both enjoyed your surprises!! Praying for Phoebe to get some GOOD SLEEP and for Amey to get well soon so that she may be reunited with Phoebe very quickly!!!
    Blessings,
    Peggy

  4. Oh sweet Phoebe! Praying for no more all night parties and lots of rest for you! She looks so precious in that photo. Praying that Amey feels better real soon and that the sickness doesn’t come home with you all! Praying and fighting for you Phoebe- we love you!!

  5. Praying for your family and of course especially for your littlest warrior who fights a terrific battle.
    When all of this is past, hope you will keep on “blogging” as there are so many of us who truly love your family even though we have never seen you in person. I think that reminds me of our mutual love for Jesus…we’ve never seen Him in person either, but someday we will and I hope to get to tell Phoebe how proud I am to meet her…and All of you.

  6. Bless your heart, Daddy. You are the BESTEST!!!
    Your whole family is always in our hearts and prayers!!!
    LaNell from Jacksonville, TX

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