1lb 12oz

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We just want to share with you all an urgent prayer request on behalf of some dear friends of ours. A couple of days ago, Sam and Nicki Brown gave birth to a beautiful little boy at 25 weeks. My math can be a bit shaky sometimes, but that is way too early. He only weighs 1lb 12oz and they are struggling to do even the simplest things, like starting an IV.

Born at 25 weeks, he is only 1lb 12oz

Born at 25 weeks, he is only 1lb 12oz

Sam and Nicki were missionaries for years and they, as well as both of their families, have been so encouraging and supportive of Phoebe and our family through all of our issues.

-Nathan

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

14 responses »

  1. God is good! Three years ago my twin girl cousins were not at 1 lb 3oz and they are well and healthy today! Favor in the name of Jesus!

  2. Prayers for the family and baby….there are so many children and families that need our prayers. My prayer list gets longer and longer, I pray for praises to take it’s place. Still praying daily for little Phoebe and your family. As I read yesterday’s post, I just thought of the man Job and how I felt that you are going through similar circumstances…….however, we all know the ending to that story and are assured of God’s mercy….Phoebe continues to be on our SS prayer list……Isaiah 41:10

  3. Amey, I am praying for your friends and their tiny new baby boy. I hope they will find comfort in knowing I have three separate friends whom have all had micro-preemie babies who are thriving and doing fine. Each of these babies weighed less than 1lb 10oz at birth – and each of them has come home to continue to grow and develop into a delightful little being.

    I pray peace upon Sam and Nicki as they watch their baby fight for his life. I truly believe God has special plans for those He gifts with a preemie – and I pray that whatever happens, your friends find comfort and strength in the Lord. He is a Just and Gracious God in all circumstances, and He is with us through our highs and lows. His miracles are around us constantly and this baby boy is another one of His perfect creations. Blessings on all three in this family.

    Praying for Phoebe and the boys as you continue to experience health issues beyond patience. Asking God to cover all of you with His peace, His patience and His comfort.

    Hugs,
    Pamela in Calgary, AB

  4. Praying for Sam and Nikies little boy…. The story of the beads is a beautiful story.They are all little warriors fighting this enemy cancer. God bless all of them and their families….

  5. I just came across Phoebes story on Facebook. Saw this post on your blog. We have a former 24 weeker who is now 4 years old. He spent 4 months in the NICU. We have a blog also and I know it helps when your going thru such a difficult time to read stories of hope. Please feel free to share our blog with your friend. If they feel it will help them. http://Www.braden-kaleigh.blogspot.com. We will continue to check on your precious Phoebe. What a brave little girl. The beads of courage are amazing. I have seen them before but didn’t know what they represented.

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