Whooping Cough Update

Standard

Sorry to keep some of you in suspense. I have spoken at length with our pediatricians, oncologist and a very nice lady from the CDC. Anytime one person in a family acquires whooping cough (pertussis), the whole family is required to take strong antibiotics. So early this week we all started on antibiotics.

Phoebe and I stayed away from the rest of the family, who all have whooping cough. She was scheduled to be admitted today for her next round of chemo through spinal tap and IV, but we decided to reschedule for Tuesday. We have spent most of the last week apart, again. Since all of the “infected” ones have been on antibiotics for many days, Phoebe and I were able to come home today and we are now all under the same roof once again.

Deacon still has a really nasty and typical pertussis cough. Amey and Ben have a lesser, but still nasty cough, while Averic, Phoebe and I are doing great! They tell me that none of us are contagious, but the effects can last as long as 3 ½ months.

-Nathan

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  1. I’m sorry that the rest of the family has whooping cough, and I’m praying for them, but what a relief that Phoebe doesn’t have it! God bless you all, and I pray everyone mends quickly.

    • Wow! You guys are just amazing. I am glad you are back together again after a “spell” of separation. You are on the Praise and Prayers Bible Study prayer requests weekly – these ladies are the best prayin’ women I know. We give thanks for each trial you come through and pray without ceasing for sweet Phoebe.

  2. So thankful for the update of reasonably good news. Very excited that Phoebe is doing well and of course u and averic. Still praying.

  3. We are continuing to pray for ALL of you to have strength that only God can give and peace in the midst of the trials. He will use this for His glory! He is using this in mighty, mighty ways (on this earth and in the heavenly realm)! Love you guys!

  4. Thank you, Nathan, for the update. Your family comes first! Thanking God that you, Averic and especially Phoebe are doing well. Praying that Amey, Ben, and Deacon are feeling better everyday. God bless you Fair Family!
    Blessings,
    Peggy

  5. I’m so glad y’all are all together again, and that Phoebe has been spared the whooping cough. Praying for your dear family to be “all better” soon, that you feel the Lord’s presence with you in this hard time of illness for the family,
    Kay

  6. Thanks for the update. I am glad you are all together again.
    The news tonight on channel 7 Tyler, reported a case of Whooping Cough
    in one of the schools. It is unclear how this can happen since a vaccine is required
    for children prior to starting to school. I hope they get a handle on it.
    The West Nile virus is enough for now and your family and the Phoebster certainly
    do not need anymore germs to fight.

    God Bless and Keep you All,
    LaNell

    • whooping cough is actually being passed more by adults then kids. Adults should get their pertusis boosters. You can get it with tetanus ( t-dap) boosters. Vaccines are not 100%. There is also speculation that pertusis may have changed slightly making the vaccine less effective. Also, keep in mind that in most states you can get exemptions to vaccines. Some kids may also not be able to get the vaccine. My youngest has a severe reaction to prevnar so that will have to be an exemption on her school record.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s