Hospital Update

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Phoebe has been in the hospital since Tuesday for her next chemo treatment. She is doing well, here are some pictures of the past few days.

Phoebe walks during Physical Therapy at home on Monday

Phoebe walks during Physical Therapy at home on Monday

 

Phoebe and daddy wait in the clinic to be admitted

Phoebe and daddy wait in the clinic to be admitted

Phoebe gets a new hat in the clinic waiting room

Phoebe gets a new hat in the clinic waiting room

Phoebe wearing a fun little wig we found at a thirft store.

While waiting to be admitted, Phoebe wears a fun little wig we found at a thirft store.

Phoebe finally in her hospital room after 8 hours of waiting in the hospital clinic.

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

20 responses »

  1. I love her bald head and her fuzz and her wig and her sweet adorable face. The pink flower is real cute on Nathan too. 😉 We are praying daily and we send our love!

  2. She is SOOOO beautiful! Thank you for sharing….

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    • Dear Lord please send all Phoebe’s Angels to her in great abundance to be with her through this one step at a time. I ask you for her total healing that we know you will provide. Her giant healing Angels to be around het and her family during these long and stressful days. I ask you LOrd for Angels for her whole family. Thank you for hearing my prayer. In Jesus name. Amen.!

  3. Love the photos. Your husband is a BRAVE man, donning the flower. Such a great look for him too. Phoebe in the wig is cute. She looks so strong on those wittle legs! Yea!
    Praying along with you….

  4. Oh Fair Family! The wig was really cute and hysterical…..what a doll to play along! Guys you stay in our prayers daily. Sweet Phoebe has certainly been an inspiration to so many. And, yes, Nathan is a brave soul and sweet daddy to post that pic in the flower. God Bless!

    Audra

  5. Love Nathan’s pink flower….Phoebe’s wig is as precious as she! Love to see her up walking!! Keep up the great work, Phoebe.
    Hugs and prayers for all!!
    Blessings,
    Peggy

  6. Amey, she is so precious! I pray for your family so much it feels like I know you even though we’ve never met. May God continue to provide for all your needs according to his riches and glory. Is there anywhere I can get your address to send cards?

  7. These pictures warm my heart, especially her standing, such progress. I know it’s been slow but she is going to be such a strong person from all this, not to mention the rest of your family.

  8. I loved ALL of these pictures! They make me happy. Phoebe is doing so good and looks fantastic. Loved seeing her walking too! She’s such a brave little girl and I love all the silly pics too. 🙂 Praying she’ll be home soon with the rest of you and that you’re all healthy again!

  9. I love all these photos- so adorable and oh so cute!! She is so precious and I’m glad she’s doing ok. We continue to fight and pray with you Phoebe- we love you!! Hope everyone is healthy and doing great!

  10. Love the pictures…and the one where she is walking is answer to prayers. Pray for you all every night, keep up the great work Phoebe!!! Much love from us in WA: Jim, Michelle & Amie

  11. Dear Lord, please send all the Angels to Phoebe and her parents in great abundance to be with them through out this journey.All of their Angels !!!!!!!!! in Jesus name. Lord send all!!!!

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