Sep24

Phoebe Walking Video

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Phoebe finished her chemo round at the hospital this weekend and is home and doing great! Thank you all for your prayers and thoughts.

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

19 responses »

  5. I have followed your journey and prayed since this began. Never was it quite so real for me as seeing Phoebe walking and hearing her tiny sweet voice. Thank you for sharing this. The last time I saw and heard her was at LCBC when Amey carried her to the foyer during the service when she was a babe in arms. Sigh………….God Bless you all, Fair family.

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  10. Awesome! This brought the biggest smiles to our faces! So happy to see this progress! We’re continuing to pray for complete wholeness.

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  12. Oh Phoebe,
    I’m so proud and happy for you. Those little muscles getting stronger and stronger. Nathan and Amey, I’m so proud and happy for you too. I know it must be an overwhelming joy to see Phoebe walking again.
    Kay

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  13. YAY Phoebe!!! We are so proud of you!!! It is truly awesome to see her walking. Praise God!
    Nathan, I think she got that hamness from her daddy! 😉

    Love you guys!

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  14. Hooray for Phoebe!!! Hooray for the Fair Family!!! Can’t thank you enough for posting all those wonderful videos. I was glued to my computer screen — watching them all with such joy in my heart.

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  15. Oh, this video just made my day!!!! I am overjoyed as i’m sure you all are too! She is doing so good, yay Phoebe!!!! God bless the Fair family. 🙂

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