Sep26

Avalanna Routh

Posted on by
Standard

Another of Phoebe’s fellow AT/RT fighters passed away today. She was six years old and battled for several years. Please pray for Avalanna’s family…

http://www.youtube.com/watch?v=P_5ZTrmenZo

 

Filed under Uncategorized | 7 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

7 responses »

  1. Thanks for posting. Am sorry for her family’s sadness and grief. Thankful for the time they did have with their girl. AT/RT is not an easy burden to carry. May God continue to give you and your family the strength and courage to “fight the good fight” for your baby girl…Love y’all♥

    Reply ↓

  3. Blessings and comfort to Avalanna’s family and all those who loved and cared for her. I am sure this is not easy for you and Nathan, either! Stay strong, my friends!
    Blessings,
    Peggy

    Reply ↓

  5. There was a sweet video of her posted on Yahoo! news, and when I saw which cancer she passed away from I cried for her and for Phoebe. I know I don’t know y’all, but I think about you every day.

    Reply ↓

  6. My heart aches for Avalanna’s family and loved ones as they mourn her passing. What a brave and feisty little girl she was…the video was a tiny glimpse into her amazing life. RIP Sweet Angel. You fought bravely and well and it’s time for you to be free with Jesus.

    Reply ↓

Leave a Reply to Child of God Cancel reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s