Sep29

Hospital Tea Party…

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Phoebe had a good day for the most part. Her hemoglobin levels and blood counts were higher today than yesterday which is a step in the right direction. Her urine culture was negative and we are waiting for the results on her nose swab. She was put on isolation today because she is still coughing and sneezing, but she has not  had fever so that is good. Please pray that whatever her body is fighting off will clear up soon.

Thank you,  Amey

Tea Party in the hospital

Tea Party in the hospital

Filed under Uncategorized | 9 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

9 responses »

  7. Phoebe is an AWESOME hostess for her tea party 🙂 Glad to see them having time and fun together 🙂 Have a blessed day!
    Blessings,
    Peggy

    Reply ↓

  8. Amey, I think this is one of my favorite pictures of your family yet. What sweet brave hearts the boys have as they play Tea Party with Phoebe! God is teaching you all…plus so many of us who pray for y’all…He’s teaching us the important things and showing us what’s not important. I love how you mentioned today (Sunday) about the eternal future we all have with each other…today is just a blip compared to our eternity with God and our loved ones. Thank you for sharing your feelings and fears…we all understand and love y’all.
    Suzy

    Reply ↓

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