Back in the ER

Standard

Asking for prayer tonight. Phoebe and Nathan are in the E.R. at TMF here in Tyler to get comprehensive labs drawn. She slept only an hour and a half last night, which is much less than her usual 5 or 6 and she seemed agitated most of the night. Today she seemed just “okay” but as the day wore on she began to appear more bloodshot in the eyes and she was droopy and didn’t seem right. This is the first time we have taken her to the E.R. here in Tyler and we are a little nervous about having her port accessed in a new place, especially after the fiasco the other night in the E.R. in Dallas. Please pray she will get just the right person for the job so it will be as quick and painless as possible and also that we can find out what is going with her so she can feel better. She goes in Tuesday for more chemo which is hard to believe considering all the time we’ve spent in the hospital this round. Hopefully she will get to spend this weekend at home with us….
I will post an update when we know more.
~Amey

20121024-221405.jpg

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

13 responses »

  1. praying for you and that dear little sweetest girl on this night for good care, quick answers, rest, and a turn for the better. love you.

  2. How much can one family endure? I cry when I read your posts and see your sweet baby girl suffering. I continue to raise your family to the Lord in prayer….he is so merciful and loving. May the holy spirit walk with you all and give you what you need each day.(( Hugs from Indiana))

  3. What a sweet baby girl precious picture…praying for Phoebe … especially asking God to provide her hospital caretakers to be just exactly what she needs. Love to you all, Suzy

  4. Amey, specifically praying that Phoebe’s visit to the hospital will not be hard on her and that the nurses and doctors there will be able to get her turned back around quickly and as painlessly as possible. Praying for you and Nathan for strength during this time as it must be troublesome in a new place with issues like this. Praying that the boys stay healthy and that you will be able to put all your effort towards finding out what the trouble is with Phoebe. Know that you are wrapped in the arms of the Lord and that your Prayer Army is still out here on the job. Anxiously awaiting any news regarding Phoebe’s condition and hoping this is just a little bump in the road on the way to better days ahead.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s