Phoebe Back at Children’s in Dallas

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Phoebe was taken to Children’s last night around 1 am. Her sodium came back at 164, extremely high again. This was the issue we had last week when she was admitted. Her Vitamin K is low as well as her Chloride. Her kidneys are not functioning properly and not absorbing the vitamins and minerals her body needs and that is messing with her water and sodium levels as well. Poor electrolyte balance contributes to heart issues and she is experiencing soem of that as well. She is weak and just doesn’t feel well. Thank you for continuing to lift up our girl. I will update again when I know more.
~Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

11 responses »

  1. Amey, this all sounds very worrisome. I am lifting Phoebe up to God in prayer – Father, please heal this little girl!!! Touch her body and heal her completely Jesus, bring her comfort Father as she continues to be so strong and brave. Cover this family in Your peace Lord.

    I admit to You that I am scared for Phoebe and sad that she is still feeling so poorly. Lord, we know that You have everything in control, but it’s still hard to leave our worries and fears with You and not try to grab them back. I trust that Your plan for Phoebe is the best plan. Please God…just make her feel well again.

    Amey…my heart is aching for you. I can’t begin to imagine the emotions you must be going through. You remain in my prayers as well. Hugs to all.

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