Oct28

Home Again, Home Again!

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Phoebe was released from the hospital yesterday and got to come home. Her fluids have seemingly balanced out and it appears that her electrolytes are getting back on track.

We asked to delay this next round of chemo that was scheduled to start Tuesday and it has now been moved to Friday. We are hoping for an uneventful week at HOME with her until then!

Nathan and the 2 big boys went out of town for a Cub Scout campout today and I know they are having a great time. Deacon welcomed Phoebe home and we had a nice dinner with my in-laws. It was nice to get to spend some special time with the 2 littles and I also got some unpacking done. Here’s to a healthy week with everyone at home!

Thank you to our friends and family who brought food, toys, clothes and coffee to the hospital. Those little things are big things!

-Amey

Filed under Uncategorized | 6 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

6 responses »

  1. Posted on Caring Bridge but want you to know we are happy to hear you are home. Hugs to you and prayers for your family as always….

    Reply ↓

  4. So glad to hear Phoebe is stable for awhile, and you get a few days of rest. Enjoy every minute of it! Prayers and love coming your way!

    Reply ↓

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