Oct26

Quick update

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Thank you all for your prayers. Phoebes kidneys are finally responding and she has finally stabilized. Her sodium has come back down to normal and her potassium and other electrolytes are back in line. We did this with hospital intervention, meaning methods that we cannot use at home.

She is still admitted at Children’s, but we are basically doing what we would do at home for 24 hours to see if she will stay stable without intervention. The last thing we want to do is have to come back again over the weekend.

Thanks again for all of your love, kind words and prayers. We will keep you updated and let you know when she gets to come home.

-Nathan

20121026-190728.jpg

Phoebe playing air hockey with a fellow oncology patient.

Filed under Uncategorized | 14 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

14 responses »

  1. Phoebe is such an amazing little girl. She has a strength in her that is just unimagineable. God continue to heal this child and guide the doctors and nurses that all of the emergency visits can end.

    ________________________________

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  2. Always happy to hear good news! So glad she is stabilized and may be coming home. Prayer continues for Phoebe and your entire family.

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  3. Thank you Nathan for the AWESOME news! Go, Phoebe! You can beat him! Glad to see her having fun:) Praying that she will stay stable so you can have her home this weekend!
    Blessings,
    Peggy

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  7. Prayers of gratitude for our Lord’s grace — may He continue to keep Phoebe stable so she can be home with y’all this weekend. Thanks for the update!

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  12. Thanks for the update and great news! So good to see Phoebe up and playing with the other kid….she’s looking much better than she did when she was admitted! Continuing prayer for all of you.

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  13. So happy for you and for Miss Phoebe. God is Good all of the time!

    Praying she gets to go home and remain at home getting stronger and stronger.

    Sunny

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