At 8:45 this morning Phoebe went into a seizure. She was watching cartoons on the couch with her brothers when Averic noticed that she was suddenly silent and foaming at the mouth. He ran to tell us and we immediately called 911. The seizure lasted for about 8 minutes with Phoebe unresponsive and locked in a sideward gaze while she coughed intermitently and shook.
I knew immediately that her sodium had gotten too low. Last week her sodium numbers were extremely high; 166, 161 and so on, so we consulted with her endocrine team and began giving her more water and increasing her DDAVP dose (the shot of hormone that makes her kidneys hold on to fluid). Last night we went up one more time on her dose and apparently it pushed her over the edge into the danger zone.
We were taken to the ER in Tyler where her labs were drawn, showing that her sodium was 129; eleven points lower than the 140 which is considered perfect. Her Potassium and Magnesium,which are all tied in to her sodium level, were also very low.
Shortly after the seizure Phoebe began to come around although her speech was a little slured and she “zoned out” from time to time. After a couple of hours she was back to her normal self and told the nurse she was “going home to see Sadie (her dog) and Matilda (her cat). I love this girl.
Unfortunately, Sadie and Matilda will have to wait, because we are now at Children’s Medical Center in Dallas.
Because of Phoebe’s tenuous electrolyte issues and her past grand mal seizures, CMC sent their Care Flight Helicopter to Tyler and Phoebe got to take her first helicopter ride! Her sodium level is now 134 and climbing as we have removed her normal water feeds and she is only getting what she drinks herself. Hopefully we will be moved down to the oncology floor tomorrow or Tuesday when she is all leveled out. Just in time to start chemo.
Poor baby has done a lot of hospital time lately. Most of all, Please pray for her stamina and that her joyful little heart will remain so.