A Wish for Phoebe

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About a month ago Phoebe’s wish-granters came to our house. A very kind husband a wife couple sat at our kitchen table and told us how both of their grandaughters fought cancer at the same time several years ago. It was that experience, and their being blessed by the Make A Wish Foundation that caused them to be volunteer wish-granters for other families fighting life-threatening illnesses.

We thought about Disney World, the go-to for most kids having a wish granted, but we knew Phoebe would not have the stamina for amusement parks. She tends to tire-out easily and get overwhelmed in public places with lots of people. We thought about a room make-over or playground equipment, but she wouldn’t care about her room and she’s not really able to enjoy playgrounds right now.

So we thought about what Phoebe likes to do since she can’t really conjure up a wish on her own. She likes to hang out with her family. She loves to eat dinner together at the table and sing. She likes to share snacks and snuggle up together. She likes watch Dora The Explorer and play playdough with Deacon. And she had never seen snow. “What about a cozy cabin in the snow?” we thought. We could cozy up by the fire, make s’mores, play boardgames, maybe go for a sleigh ride. So Phoebe made a wish for snow and a cabin.

And then the snow came down on Christmas Day. She sat in the bay window and watched the fat flakes as her brothers ran around catching the snow. I think she was confused! The next day we bundled her up and ventured out into the white wonderland our yard had become. She took tentative steps and giggled as Daddy held her hand. When she came back she said “I crunched the snow Mom!” She was delighted.

Make-A-Wish called today and it looks like we’ll be heading to Colorado sometime at the end of this month! We have arranged the dates so that Phoebe’s counts will hopefully be in a good place. It seems beyond scary to go so far from home, but we want to do this while Phoebe is feeling good. Please pray with us that everything will line up just right in her body. I know this will be a treasured time for all of us. And if you’re ever looking for a foundation to give to, Make-A-Wish is top notch. We have been nothing but blessed by Make-A-Wish and The Ronald McDonald House.

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  1. Oh sounds so exciting! I will be praying that everything works out for the best with the best possible out come.

    My friend’s daughter had a kidney transplant and Make A Wish was so amazing towards her. She didn’t want any trips but desired a greenhouse and they provided it for her. Make A Wish is a good charity to give to.

    Praying

  2. That is precious that Phoebe got to “crunch” the snow! I love to crunch the snow too and we have over a foot of it to crunch 🙂
    We will pray that all goes well and the FAIR FAMILY can all enjoy a toasty few days in a warm cabin enjoying family time! YOU ALL deserve it!!
    ENJOY!!! and Thank you to the wish-makers!
    BLESSINGS,
    Peggy

  3. That is awesome. I pray everything works out for you all to go and enjoy a much needed time away from the activities here. I am so excited for you. Have a great time and I look forward to hearing about your trip with lots of pictures.

    Love you guys, Rod and Connie

  4. How awesome is that! So excited for all of you…we’ll reserve the Disneyworld trip until she’s up to it though. =) I think you guys deserve that too.

  5. What a wonderful thing that couple is doing in memory of their grandaughters cancer. I will be praying that Phoebes counts are perfect and that and your family will all have a wonderful time!!!! God Bless!
    I also absolutely loved your post about the car ashtray. What a great memory. The 1st date I had w/my husband, the passenger door couldn’t be opened on the outside as the handle was broken but he wanted to open the door for me so I stood there while he went into the drivers side, leaned over and pushed it out so it would open and then came around to escort me in. It was humerous yet sweet at the same time and I smiled as I read your story. Memories are wonderful things:)
    Praying daily for your sweet family!

  6. This is great! I pray that you all have a wonderful time and that there is no unplanned hassles or struggles the whole time you are gone. Blessings to all of you!

  7. We did the same thing with Joseph last November! We stayed at Beaver Creek Lodge! They treated us like royalty! We made some very special memories!

  8. This squeezed the tears out. What a precious wish and special family.
    Our 3 1/2 year old, Bekah, still prays regularly for “my friend Phoebe to get all better and not be in the hospital.” They’ve never met but maybe one day.
    God bless you guys.

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