Jan8

9 more weeks

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Phoebe had a wonderful time spending the night with her great-grandmother last night. We’re going this morning to spend the week in hospital for her third to last round of chemo.

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

8 responses »

  1. Praying for everyone as Phoebe goes for this last Chemo treatment. We are praying the Miracle continues. Love the photo of Phoebe and her Grandmother. So sweet. Sunny

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  2. She looks beautiful and so grown up sitting with her grandmother. Praying for her always and doing a cheer that she is on her third to last treatment. God is so good,

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  3. This is a precious picture of Phoebe and her Great Grandma 🙂 Blessings to all!
    Love and Blessings,
    Peggy

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  6. Love that she is able to spend time with her Great-Grandma. I’m sure her Great Grandma cherished the time more than ever! Praying that all goes EXTREMELY well over the next few treatments and that Phoebe will come out on the other side of this event a happy, healthy little girl. Always in our prayers!

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  8. Dear Amy,

    Thank you for posting Phoebe’s progress thus far. I’ve been following her story since you first started posting. How I came to know about Phoebe’s story was through your Grandfather Zig Ziglar (May he Rest in Peace). I was receiving emails through his website after having the pleasure of listening to him at one of Brian Buffini’s Mastermind conferences in San Diego. He sent out a notice about a year ago now letting people know how seriously ill his little Great Granddaughter was.

    Amey, I am praying for you and Nathan, all the way from Canada( near Niagara Falls), that after the next round of Chemo, Phoebe can live a healthy and active life as every little girl and boy should.

    I’ve wanted to post for some time and I am sure you must get a ton of email.

    Please take care and I hope you have a great time in Colorado and I hope some great memories are created with your family.

    Sincerely,

    Brenda Rowe

    **By the way, that is a beautiful picture of your grandmother (The red head, as your grandfather would refer to her J ).

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