Jan18

Just thought you should know…

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Phoebe is doing great, her immune system is coming back and we are on the way home!

-Nathan

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

32 responses »

  1. Hallelujah! More answered prayer!

    Laurie Magers
    Executive Assistant
    to Zig Ziglar
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    Ziglar, Inc.
    5055 West Park Boulevard, Suite 700
    Plano, Texas 75093
    469-326-7521 direct
    469-326-7556 fax
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    Sign up for a FREE gift!

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  3. Praise the Lord!! Thank you, Nathan, for posting this and the sweet pics! You look like one happy daddy 🙂 Blessings and continued prayers for your family and miss Phoebe. –Jeannie

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  6. HI PHOEBE!! HI NATHAN!! I’m so glad you’re heading home. How nice it will be to see Mommy and your brothers…AWESOME!
    Love you,
    Suzy

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  28. Thank you for letting us know and thank you, Jesus for yet another victory!!!
    I never tire of hearing about the Phoebster. Will you please keep me up-dated on her for the rest of her life?? Seriously, I will never forget her and I want to know how she is growing and what good things God has planned in her life. I’ll but the book if you write it, but it needs lots and lots of pictures. I treasure all the videos of the whole family.

    God’s continued watch and care over you all,
    LaNell

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