Jan20

Thank You

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There are hundreds of people to thank, quite possibly thousands if you include all of the people praying for Phoebe. We do our best to send thank yous out. Recently I took a picture of phoebe, thanking our local hardware store. The owners are a wonderful couple who attend our church and helped us, along with many others, to make our house safe for Phoebe to come home to.

Although this was an indescribable blessing, the reason I bring it up is because I really wanted to share the “thank you picture” we took because she is so darn cute in it!

Thanks Smith County Lumber Co in Lindale!

-nathan

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Filed under Uncategorized | 12 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  5. My name is Evelyn Costolo and I am the CEO of Wipe Out Kids’ Cancer here in Dallas. I was given your name by Alli Rutledge. We would love to help your family out! Please do not hesitate to call on us at ecostolo@wokc.org. Blessing to you all.

    Reply ↓

  6. This is a great photo of a loving, adorable little girl that we have grown to love…even though we haven’t met in person. We enjoy getting to know your family and having the privilege of praying for all of you! God bless you all and keep you safe! We are delighted in seeing Phoebe looking so wonderful!

    Reply ↓

  10. I think you underestimate the # of ppl praying for Phoebe!! Besides prayer, what is the most important thing/s? I can’t think of any. You are so lucky to have the support you do, I hope ALL children get what Phoebe’s getting. I realize she has the famous grandfather, so many don’t. let’s pray for all the sick.

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  11. Wow, I sounded sort of harsh that last reply….I am sorry. It was a day I had heard about a few kids in great need. Phoebe is an angel & deserves everything she’s getting. PLEASE know how many ppl are amazed by your faith & perseverance. You have touched & changed so many lives through your posts & your Daughter’s illness, but mostly her spirit!! Love to all the Fairs Hope all is * okay.* We know you write when you can. Let us know in Mn. what you need besides prayer, which is a given. xoxoxo

    Reply ↓

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