Chemo Postponed One Week

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I just realized that neither Amey or I have posted any updates since Phoebe was released from the hospital. By now you know that no news is usually good news.

Over the past few weeks we have been battling some kind of virus. Phoebe was scheduled to be admitted today for chemo, but on top of everything else, she has developed some kind of head cold with a nasty cough. This is not typically a big deal, but she needs to be at tip-top shape to handle the beating the chemo dishes out.

My prayer is that God will continue to sustain Phoebe in ways the rest of us could never understand….

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

9 responses »

  1. Your right, no news is good news! Praying for this cold to go quickly. Chicken soup and garlic bread are amazing at knocking colds back. I also heard cinnamon with honey in a hot drink does wonders.

    Praying and praying,

  2. I have run many fund raisers for the Dana Farber Institute via the “Jimmy Fund” & the Boston Red Sox. I am reminded with pictures of this little darling as to why it’s important to help year in and year out with the fight for the cure and care of children with cancer. God Bless your daughter and your family!

  3. Nathan, thank you for the update. I love the pictures of the kids….especially the one of Phoebe and Deacon (?) helping in the kitchen 🙂 Prayers that the “nasty bug” leaves the Fair household ASAP!!!
    Blessings,
    Peggy

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