Phoebe Duty

Standard

My 2 older boys are spending the night in Phoebe’s room for the second night in a row, taking the night shift. I am so proud of them and so blessed by them both. They asked if they could stay with her and I thought one night would do them in, but they took naps today and wanted to stay with her again tonight! They only woke me up 3 times to ask about diaper cream and snacks for Phoebe. They have had to grow up so quickly this year in many regards, but it has made them shine as loving brothers. Proud Mama.

-amey

20130203-010851.jpg

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

8 responses »

  1. Thar is one of the sweetest things I have ever heard between a brother and sister!! What a testament to the way you have raised your children! Praying always for your family.

  2. Awesome!!! What beautiful, caring boys you have. 🙂 I just love how Father put a love in their hearts for Phoebe. Thank You Lord for bringing this source of relief and joy to Amey and Nathan.

    Praying and praying for God to grow a pituitary gland.

  3. Way to Go, Averic and Ben!! So PROUD of BOTH of YOU 🙂 Super special that you are giving Mom and Dad a break. Amey and Nathan, you are VERY BLESSED!! Have a very fantastic Fair Family day!
    BLESSINGS,
    Peggy

  4. our thoughts and prayers are with your brave little boys and their precious sister. think of the precious fathers these little guys will be one day. All becuz they have more love in their hearts through this experience.

  5. Great job, boys! What a blessing to your mom and dad and most especially to your little sis!! Blessings to you all! and continued prayers — Jeannie

  6. What awesome boys! Thank you God for this help. You said the Kingdom belongs to them! We continue to pray for miracles!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s