Almost Done!

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Tomorrow morning Phoebe goes in for her next to last round of chemo. We can see the light at the end of the tunnel! Her next MRI takes place on the 11th. Thank you all for standing with us, praying for us, and supporting us. Although we will still have hurdles post-chemo, we are thankful to be where we are.

-amey

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

10 responses »

  1. Love those words “light at the end of the tunnel” it’s been a long year but we’re still standing with you guys. Thanks for posting

  2. It’s benn been a long bumpy road with so many ups and downs …. We’ve smiled with you and we’ve cried with you and most importantly.weve prayed with you … And we are still praying for strengthth and health for all of you — especially sweet Phoebe!

  3. Amen!! I will absolutely continue praying for your girl and your family. Phoebe has become such an intricate part of our daily prayers as a family, I know we won’t ever stop lifting her up to God. We are so thankful that you guys are where you are at in your journey. God Bless your amazing family and precious Phoebe!

  4. Praying this next to last round goes well. We love the light and are praying with Marilyn that the light becomes brighter and brighter. Praying for strength and endurance and thanking the Lord for Miss Phoebe and all of your family.

  5. Praying for y’all in the home stretch! May Christ completely heal your dear Phoebe. The light she and all of you share brings us all such joy and inspiration.

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