Feb26

MRI Results

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MRI Results were good, everything looks fine. She got her intrathecal/spinal chemotherapy and the LAST round of chemo starts tonight! She is back in her room munching on a cookie after a long day of no food. Here’s to the grand finale!

-amey

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Filed under Uncategorized | 18 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

18 responses »

  1. THANK GOD & Thank You, Amey for the update 🙂 Eat away Precious Phoebe…you deserve it!
    In fact, I will have a cookie with you 🙂
    Hugs & Blessings,
    Peggy

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  2. Nathan and Amey, Phoebe and family, We are praying for you here in Welland Ontario Canada. I’ve been following Phoebe’s story from the beginning and will be thinking of you all over the next few days as you travel through this final round. Brenda Rowe

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    • Praying for you, Precious Phoebe as you enter this final stage of treatments, praying that God supply the strength for this final journey. Praying also for your family that God give to them relief from any anxieties that might arise. In His Precious Name, I pray, Amen

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  7. With everyone else, we are praying for you, Precious Phoebe, as you enter this final stage of treatments, praying that God supply the strength for this last round!!! In His Precious Name, Amen

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  12. God’s strength is with Phoebe, He is healing her body for her Spirit stands strong. God fill the family with your strength and courage. God bless each one of you. Much love and blessings.

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  13. She’s soooo cute! You are amazing Phoebe! Continuing to pray for your complete healing, in all areas of your cute little self!

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  15. I read your posts regularly (I heard Phoebe’s story through a friend of a friend), but I don’t think I’ve ever commented. I just had to say that your daughter is AMAZING. Looking at this photo of her sitting in her hospital bed, and that she’s on her LAST round….meaning that she’s been through so much, and that she’s done it all, managed it all, persevered through it all, with such a sweet spirit…she is AMAZING. I have a three-year-old of my own, and although I can’t fathom what you all have been through and are going through, my heart still aches for her to be healed. God’s peace and strength be with you.
    Tina

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  16. Prayers being lifted for you daily. Thanking God for you and your husband and precious family. May Gods presence be felt in a powerful way during this last round. Love and ble ssings to you
    Marilyn from YN

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  17. Last round of chemo? It seems like this would never come, yet here she is soldiering on. Praying for a smooth final round and a chemo free lifetime for lil Pheebs.

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