No Mo Chemo

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What a day. I am so blessed, and our sweet Phoebe was so blessed by all of the family and friends that made her “NO MO CHEMO” celebration so special. Thank you to all of those who came and waited patiently for her discharge from the hospital, and to our AMAZING church family at FBC Lindale for decorating our home so beautifully, folding laundry, unloading my dishwasher and changing the CATBOX!

Phoebe’s homecoming parade was awesome! We came home to a wonderful feast of fancy cheeses and breads, fresh fruit, nuts, etc. We are blessed to have so many wonderful people in our lives. Thank you for making this day amazing for our Phoebelicious and for all of us!

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

22 responses »

  1. Praise God for this day!!! God is so good!!! Celebrating on this glorious day with your family and precious Phoebe!!!!!!!!!!!!!!!!!!!!!!!!

  2. I’m sooooo happy for your precious little girl & for your family. What a blessing she must be for all of you. She’s a very brave girl. God bless you all.

  3. Amy and Nathan, I am so happy to know that the one year mark has finally come. I am so happy for Phoebe. I am so so so so proud of Phoebe for fighting so hard the way she did. And Amazed by the love, dedication, hardwork, sleepless nights and endless faith you two put each day to get it all done. I am sorry I wasn’t able to be there because I am in Brazil visiting both of my grandmothers. But I thought of you all so often awhile here and waiting for the big day to come. Forgive me for I didn’t sent you guys gift of Christmas yet. Been out of the country so often. But I will put in the mail once I am back next time.

    Thank you for making me part of Phoebe’s journey. And I will continue praying for her to be chemo free. Congratulations. God is just wonderful.

  4. PRAISES WHAT A BEAUTIFUL DAY OF BLESSINGS. Thank you for posting the pictures.
    Love to all of you,
    Marilyn from TN

  5. What a joyous day! We continue to pray for Phoebe and your family and we are so very thankful that her ordeal with Chemo is finally over. Praise God!

  6. Such wonderful news. I won’t stop praying for Phoebe. This precious child and her family haave touched me/us so much throughout all of this. God Bless your lives dear ones. Barbara Booker

  7. I’m with Barbara. Will continue to be in prayer for Miss Phoebe and your family. Thank you for allowing us to journey with you. Praising God for His beautiful blessings. Grace and peace to your family — Jeannie

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