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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

13 responses »

  1. Omgoodness, what a beautiful little sweetheart. God is surely smiling down on her & her family. Praise God for healing her.

  2. Phoebe has stolen my heart!,Thank you Jesus for taking care of Phoebe and my heart.Bless her family and get Glory to your Holy Name through all of these issues.Bless all those who have given her care. in your Holy Name Jesus,Amen.
    Shirley

  3. How wonderful to have your sweet little girl at home with her family. Praising God and praying for continued perfect health!

  4. Suffer the little children to come unto Me for such is the kingdom of God—this is what the Lord Jesus said and He definitely has given Phoebe amazing grace and Mommy and Daddy and all the family. the times of exhilaration –total exhaustion–not knowing if you could move another step from sheer tiredness and maybe despair even — but you all kept going on and moving upward in God’s amazing grace. and we had the opportunity to share your sorrows and joys because of your reports. this is from Honolulu, Hawaii. mahao for sharing your story and we will continue in prayer for you. perhaps today we will hear the shout.

  5. WHAT A BEAUTIFUL PRECIOUS PHOEBE – I AM SO THANKFUL FOR YOUR SHARING THIS
    PHOTO WITH ME – HAVE A VERY SPECIAL DAY AND I KNOW I WILL AFTER VIEWING PHOEBE.
    THE LORD BLESS YOUR FAMILY – I AM BLESSED TO KNOW YOU.

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