Mar6

Low hemoglobin

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Phoebe is doing well but ended up in the hospital today with low hemoglobin. She has spent the day getting transfused with a bag of blood.

-nathan

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

8 responses »

  1. Sweet baby girl! God bless you…. I know you will feel so much better after the transfusion…and you will be up and going very soon. Prayers for you, sweetheart, and your family!

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  2. Just a note to share with you about sharing the pictures that have been posted on FB over the past year. As I was catching up with the latest post the little 4 year old that I keep a couple of days a year saw the pictures and was impressed with Phoebe’s balloons, the hospital employees, the different hats that Phoebe has worn in the various pictures but mostly he was impressed with how pretty Phoebe is. God continues to bless daily and all of you continue to bless the rest of us.

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  3. Precious Phoebe and Amey, praying you both have had a restful day together. Praying the transfussion helps and you will be back home with your guys very soon 🙂
    Blessings,
    Peggy

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  4. There is power in the blood…the life giving blood she recieved! My thoughts and prayers are with you all and this little walking miracle. We will continue to lift her adn your family before our Loving and Gracious Father….who gives us the strength we need. Bless you all.

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  6. Father, thank you for what you have done this past year for Phoebe. Watch over her and restore her blood chemistry and keep it in balance. Restore her systems to normal out of your great love. Let this family enter a season of rest.

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  7. Praying with you. . .for her hemoglobin to be on the increase. Lord, thank you, for all the ways you have provided for Miss Phoebe and her family. Thank you for this transfusions and for the benefits it will bring. Lord, we look forward to the day of complete restoration of her health. We keep our eyes trained on you in the meantime and thank you for never leaving us on this journey.

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