Mar7

Fever

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Nathan and Phoebe are in the ER tonight waiting to be seen. Phoebe had not been feeling well this afternoon; lethargic and sleepy, and when she woke up after her nap around 4:30, she had a fever of 102.6.

Usually after Phoebe receives a blood transfusion she feels much better and things are uphill from there, so it’s a little scary for her to spike such a high fever with her counts bottomed out. Please keep both of them in your prayers tonight. Port access can be a little traumatic sometimes in the ER if she doesn’t get a nurse who is familiar with accessing. She still has a fever of 102.4 and is feeling really crummy.

We already know that she will be admitted because her counts are bottomed out and she has fever. I will update when we know more.

Thanks,  Amey

Filed under Uncategorized | 7 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

7 responses »

  5. Praying for the power of God to be infused into Phoebe’s precious body, bringing down her fever and making her stable once again. Also praying for strength for Nathan as he is with her….and for the whole family. The blessing of the Lord be with you and upon you! Isaiah 41:10, 13
    -Mary Garborg

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