Phoebe is on the upswing. Right after she received her platelets and blood transfusion yesterday, Nathan sent me a picture of her walking to the playroom! The difference in how she feels pre vs. post transfusions is really incredible. Blood is so important, and having the right amount of the right things in your blood makes you able to function properly.
The best news is that her ANC (Advanced Neutraphil Count) is 30 today, which means that her immune system is revving up again and she could be headed home as early as tomorrow. It’s wonderful to think this might be her last transfusion for a very long time, and that soon enough we can take her all around town and to church without worrying about her immune system! What a feeling that will be, to just be able to go places with our whole family intact.
Eventually we will work towards weaning her off her ng tube, giving all of her meds orally, and teaching her that she has to drink despite her lack of thirst. We will also be setting up a set-caloric intake to help balance out her weight. There are still many challenges ahead, but having been through the last fourteen months, they seem minimal in comparison to chemotherapy and learning to swallow, breathe and walk again after sepsis. We can do it! She can do it! We have so much to be thankful for.
Here’s to Phoebe coming home to stay!