Mar9

Rough Round

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Phoebe is having a hard time with this round of chemo. Her hemoglobin and platelet levels are lower than they have ever been before. She just received a platelet transfusion and is now getting blood again. Her blood counts are still at zero. Please pray for her body to rally back from this tough round.

Thank you, Amey

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

13 responses »

  2. My heart breaks each time Phoebe has another battle to fight. Your family and Phoebe are constantly in my prayers. May the good Lord bless you all and give you the strength and courage to continue the fight.

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  5. Praying with you all! Father Lord, you know the cry of our hearts is for Phoebe to get well and strong. We are keeping our eyes Heavenward when we know our Help comes from. Please rain your Peace down on the Fair family this morning, Lord. Sending you a BIG hug, Amey. Wish I could deliver it in person. . .much love to you all — Jeannie

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  6. Oh Mama, I’m so sorry. Praying for beautiful Phoebe. Strength for all of you in the depths of your beings and for physical healing of Phoebe. Peace in the midst. Love you friend!

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  7. Praying that the Holy Spirit jump starts her bone marrow to increase her cells/hemoglobin. May Jesus be extra present as well to sustain her joyful spirit as she patiently waits for healing. Love Mike’s comment above, Fight Phoebe Fight!

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  10. Our Dear Father, Please be with Phoebe during this difficult time, giving her strength and giving
    her platelets and blood counts to return to a good count. Also, Father, please be with Phoebe’s parents and give them Your strength for this day and Your Hope of a brighter tomorrow. In Your Name I pray, Amen

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  13. Dear Fair family. I awoke and read of Phoebe. On my knees, here in New Mexico, looking to the Author and perfecter of our faith for super abundance in her new cell count. Raise this dear Phoebe from her bed today Lord, and let the blessing be known far and wide. Amen.

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