MRI Results Tomorrow

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We just returned home from a long day at the hospital. Phoebe did well in her MRI and came out of the anesthesia pretty well. Unfortunately, by the time the MRI was complete it was 7pm, which means we won’t have the results until tomorrow. Her headaches are becoming more infrequent since we started treating her with antibiotics for the double ear infection and that brings a lot of encouragement. We expect great results tomorrow and will keep you posted as soon as we know.

Thank you all for thinking of us and praying for Phoebe, she had a great day.

~Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

8 responses »

  1. Dear Amey and Nathan,
    We want to thank you for having our daughter stay with you and help care for Phoebe. I am sure Jen shared her life story of what we all went through for almost her whole life. God had a plan for her life and has marvelously done great things in and through her. We are holding you up in prayer and for Phoebe to endowed with power and great healing, to be another testimony to the Lord’s amazing grace.
    We will put Phoebe on our church prayer list and I assure you we do pray and have seen miracles with healing. On of our Pastors also had a brain tumor and is now doing well, in fact is pastoring a new church ! Jen was honored to have met you and to have helped with Phoebe.
    I would encourage you to apply for help as the medical bills are astronomical I am sure. We were told Jen would bankrupt us under our insurance. We never knew about catastrophic child help till Jen was a teen. She spent 4months in the hospital and over 20 years on medication. No one is really sure if the lyme caused the MS or if they are 2 separate things. At one point jen took herself off SSI and that cost us $27,000 on credit cards to save her life, so we were so glad of the Medicare to pay for her meds at $1800. Per month.
    It is a difficult time when we go through so much anguish, but I fully believe God has a perfect plan. After Jen almost died 3 times, with the MS she hid herself away with The Lord day and night, played worship hymns and sought Him for healing. They had said she would not recover, would need a walker and the prognosis was not good. As you can see she has Gods favor as she devoted herself to ministering to others all around the world. We are constantly amazed by how God has used her life! The brain lesions come and go but nothing stops her from walking in Gods plan.
    This is my prayer for Phoebe…that she will totally recover, God will strengthen her inner being physically , mentally, spiritually so she can walk out the Lords plan for an amazing life in Him!
    Write all the healing verses on tag board and put those words up all around her. Surround her with songs if deliverance day and night. I did that for Jen when she was in the hospital in intensive care. They were a witness to all of God’s healing power.
    May you be abundantly blessed encouraged and upheld as you care for Phoebe and your family. We will continue in prayer and again thank you from the bottom of our hearts for allowing Jen to help.
    Abundant Blessings and Christian love,
    Alice and Joe Giunta
    Ps can Phoebe be on Facebook or do you not do that?

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