Apr16

MRI Clear…. Of course!

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Phoebe had a 15 minute seizure this morning and temporarily lost movement on her left side. She had a hard time coming out of it. At the ER now.

MRI results from yesterday came back clean! What a bittersweet morning! Rejoicing together in the ER… It’s been that kind of day…

-nathan

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Filed under Uncategorized | 12 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  1. Praise God for the clear MRI!!! Praying for a quick departure from the hospital. SO thrilled to read such an amazing post!!!

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  2. Yessss Praise God first and foremost! Praise Doctors, Nurses and modern medical science! And praise Nathan and Amey for their faith, strength, perseverance, joy, concern, inspiration that they share not only with their family but with all of us too.

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  5. It always seems that things are bittersweet. I’m so happy to hear the MRI is clear, but I’m sad Phoebe has to deal with this seizure. I’m asking the Lord to remove them from her body as well as whatever is causing them, so she can be back to her sweet adorable self.

    Hang in there Amey and Nathan…we’re not letting go of lifting you all up yet!

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  6. I love Pamela’s thought, “we’re not letting go of lifting you all up yet!” Prayers for perfect healing for Phoebe.

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    • Thanking you, Lord Jesus, for the clear MRI. Praying now that these seizures come to an end soon and Phoebe is well on the road to complete healing. Amen

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  9. She surely looks beautiful and helpful. Praises for the wonderful MRI. God is so good! I am for more good news after the seizure.

    Brenda Rhodes-Sent from my iPad

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