Phoebe and I (Amey) came home late this afternoon. We are still not sure what caused her sustained fever since all of her labs were good and she had no other symptoms. Unfortunately, whenever Phoebe has a fever or her body seems to be fighting off an infection we have to triple dose her steroids to give her extra cortisol support or else she could crash and become unconscious or unresponsive. So, the yucky side-effects of the steroids have begun; lots of weeping, ultra-sensitivity, tantrums, frustration, and a voracious appetite. They also interfere with her sleep, so we are in for a long night.
Otherwise, she has been pretty content at the hospital. She rolled onto D6 (the oncology floor) and was given a superstar’s welcome by all of her old nurses and hospital staff. She ate up all the attention and proudly showed off her new hair and eyelashes. She was extra excited when her Mammaw showed up with tortilla chips and snuggles and I think the whole stay felt like a fun overnight visit to see lots of folks she knows and loves. She’s not even phased by the hospital and that just has to be God’s grace in her life.
We spent the morning in the playroom making crafts and waiting to get the okay to go home and we were on the road back to East Texas around 4:30. Please pray that these steroids will filter out quickly and give her a break, poor Phoebes is a bit of a wreck tonight.
Thank you for praying for us and thinking of us!