Phoebe and I (Amey) came home late this afternoon. We are still not sure what caused her sustained fever since all of her labs were good and she had no other symptoms. Unfortunately, whenever Phoebe has a fever or her body seems to be fighting off an infection we have to triple dose her steroids to give her extra cortisol support or else she could crash and become unconscious or unresponsive. So, the yucky side-effects of the steroids have begun; lots of weeping, ultra-sensitivity, tantrums, frustration, and a voracious appetite. They also interfere with her sleep, so we are in for a long night.
Otherwise, she has been pretty content at the hospital. She rolled onto D6 (the oncology floor) and was given a superstar’s welcome by all of her old nurses and hospital staff. She ate up all the attention and proudly showed off her new hair and eyelashes. She was extra excited when her Mammaw showed up with tortilla chips and snuggles and I think the whole stay felt like a fun overnight visit to see lots of folks she knows and loves. She’s not even phased by the hospital and that just has to be God’s grace in her life.
We spent the morning in the playroom making crafts and waiting to get the okay to go home and we were on the road back to East Texas around 4:30. Please pray that these steroids will filter out quickly and give her a break, poor Phoebes is a bit of a wreck tonight.
Thank you for praying for us and thinking of us!
Amey
An Atypical Miracle 
Please remove me from your email list. God bless you and your family.
bkdavz345@aol.com
Hey Brenda,
Thanks for contacting us. This is a blog and we do not maintain any kind of mailing list or keep people’s emails. If you are receiving email updates it is because you have opted to “follow” our blog with your WordPress account or you have signed up for Caring Bridge updates.
On WordPress, you would just go into ‘blogs I follow” and unfollow Phoebe’s page. On Caring Bridge, I believe it’s similar. I know how annoying it can be to get unwanted emails. Let me know if you can’t figure it out and I will look into it further!
Nathan Fair
Praying that the steroids leave quickly and let Phoebe feel back to 100% very soon! Will be praying that you all can have a restfull night including Phoebe!
Take care and sounds like Phoebe had a great time visiting her ol’ friends!
{{HUGS}}
Peggy
Fantastic news! Thank you, GOD for letting Phoebe go home to her family! Bless you, Phoebe and the rest of your precious family! God is with you all the way! Prayers for a peaceful night and lots of rest for all of you!
Echoing the prayers that the steroids leave fast. May God’s angels manage to sing Phoebe to sleep (with praise for God’s goodness), so y’all can rest too!
Praise God. We press on for complete restoration and healing for Phoebe
Thank you Amey- for sharing this journey and for your Christian example!
Cheri Perry
You can get everything in life you want if you just help enough other people get what they want. -Zig Ziglar
PRAYING!
Praise the Lord. Praying she recovers quickly from the steroids.
Praying with Bill B for complete restoration and healing for Miss Phoebe. Praying peace over her steroid hyped body. . ..and your family.
PS we love, love her pretty eye lashes! She’s given us a new appreciate of something we’ve taken for granted. 🙂
Praying for you Phoebe and for the whole family. Hoping and praying tonight will be a good night for the whole family.
Praying for her of course.
Maybe she just needed to be an inspiration for someone she saw at the hospital or someone reading your post. She and her family are definitely someone to receive inspiration from.