Family Camp

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This week we are in Florida attending a family camp for kids who have cancer. It has been an amazing experience, we have been able to sit down with lots of Other families that know exactly what we’re going through.

They have pampered us and gone through extreme measures to make sure we feel comfortable. Our meals are cooked for us, our clothes are washed, beds are made, and activities planned for the kids and adults.

Everyone is having a great time!

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

8 responses »

  1. Thanking God that the Fair family is having a FUNtastic, relaxing trip and being spoiled and pampered! Looks like you are all having a great time. Do a FAMILY HUG with each other from Mike & I 🙂
    Blessings & Love,
    Peggy

  2. May our Lord continue to bless those who bless you!
    Well, except for maybe the soul who let Nathan have black wooly ‘worms’ for his eye brows, . . . .

  3. So glad you guys are having a great time and being pampered! So nice to be with all other families that are going through the same things too. Loved the pictures of all of you………such a precious family you have and I continue praying for all of you. Love all of Phoebe’s hair too 🙂

  4. How wonderful! Y’all deserve all those special blessings. May your spirits continue to be refreshed and infused with joy. Steadfast prayers for all of you.

  5. Nathan, I love the brows! Amey, you are just as beautiful as ever! I want to jump through the picture and give you a big squeeze! And sweet Phoebe, I love your hair growing back! So beautiful as always! Hugs to the entire Fair Family!

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