Phoebe’s Story of Life…

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The long anticipated video of Phoebe’s life from birth in Meixco to the end of Chemo treatment a couple of months ago. We praise God and thank all of you for where we are today! What a difference…

Youtube:

Click link below to watch on Vimeo:
Phoebe’s Video on Vimeo

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

39 responses »

  1. Amey, could have used a tissue warning before we watched this one. That is an awesome tribute to the life that Phoebe has had. What a journey ALL of you have been on! GOD BLESS EACH and EVERYONE of you!!!
    Love , Blessings, and HUGS,
    Peggy

  2. Oh my goodness, what a precious video of a very precious little girl! I’m so glad she is doing so well now & will continue to do so because of God’s great love for her & your family. Thanks for sharing it with us.

  3. oh my..yes a tissue warning would have been good!! How incredible- thank you so much for sharing. I have a newfound respect for those who work in hospitals. You are an amazing family and a NEW season has begun!!!! love you so much~

  4. This is fabulous … Phoebe is a miracle and the world is a better place with her in it. Thanks for sharing her with all of us. Still praying every day for her health and happiness.

  5. What a wonderful video! Phoebe has come soooo far! She has so much strength wrapped up in that little body!

  6. Great job on the video! Phoebe is a fighter and a miracle. Had to get the tissues out for this video. We love you guys!

  7. Speechless also,, I watched this with consumed with tears of joy!!! For the little girl and her family that I don’t personally know, but has become a very important part of my daily prayers! God bless you and your beautiful family!

  8. God is so incredible! I can’t wait to see what He has in store for Phoebe and her life! She is an absolute miracle just like she said 🙂 And yes please issue a tissue warning! My heart is overflowing with joy for your family.

  9. You shouldn’t make me cry while I’m at work. 🙂 What a wonderful wonderful video of Phoebelicious’s long hard journey. I have been praying with and for you all throughout these long long months and years. I cannot even begin to tell you how much I love your family…how you have reflected God’s love and mercy in how you’ve lived your lives throughout this mountain of a challenge. You are remarkable people and I will always be grateful for having followed you along this rocky path. Throughout it all, your faith in God has sustained us all. Love and hugs to Phoebe as you live HAPPILY EVER AFTER!! YAY GOD! YAY PHOEBE!

  10. Amazing video!! So touching and just astounding to watch. You guys are a wonderful family and will stay in our prayers always!!

  11. -that´s so amazingly beautiful, still very hard, I can´t hold back the tears.

    That awesome little girl…this really touches very deep. We love you Phoebe.

  12. Lots of tears and heartfelt appreciation to God for Phoebe! What lessons this little girl can teach to anyone daring to take the time to listen. Thank you for sharing her life (and yours) with us. We continue to believe for total restoration for Phoebe’s body!
    Pastor Ginny

  13. Thank you for sharing. Thanking God for His healing work in Phoebe – Continuing to pray for Phoebe and your family always.

  14. What a beautiful, touching story. As I watched Phoebe, I could just see her inner beauty, love and determination to live. I was also envisioning her future. Oh what wonderful, powerful lessons she will have to teach humanity when she grows up. And, what wonderful loving parents, family and hospital staff she had for support. Each one of us needs to look at this video anytime we think about complaining about anything. Thank you for sharing the beautifully done video! Freda

  15. Absolutely perfect. Praise God for giving us Phoebe, showing His light through her, and giving all of you the happily ever after, now and forever, AMEN!!

  16. My goodness, I just cried my eyes out! I remember this entire journey, and Phoebe along with all of the Fairs have impacted me in soo many ways! I still of you guys often and keep you in my prayers! Phoebe will always be one of my most dear patients!

  17. Such a beautiful video, thank you! It was wonderful to watch a recap of Phoebe’s (and the Fair Family) life. My prayers are still (and will always be) with you all. Phoebe, you are indeed God’s little girl.

  18. Oh my! Yes, loads of tears. I love you guys so much. Praying like crazy and so blessed to ride this journey from the other side of the country. We are continuing to pray for this happily ever after story in this precious princess’s life! HUGS FROM CALI!

  19. Cried and cried. Thank you for sharing your family story. A little girl and beautiful family of astounding courage. Have prayed for you over these years and will continue…. Though we have never met, we are in the family of God. An honor to Lift you all up.
    We Cling!

  20. I love this precious video!… my heart is breaking for you all.. after hearing the latest update. when phoebe would come to Dr. Lee’s office I would see this sweet princess! and My day would always be made brighter! She’s has really touched me with her stories of her animals… and how her sweet daddy let her paint his nails, and she always had her nails painted too! I love this lil girl and I’m earnestly praying for God to heal her. Praying for you all. Thank you so much for sharing this precious video!

  21. Oh my goodness! I just read about your daughter’s story from a friend and watched this video. She is so sweet and beautiful. My 6 year old neice just got done with chemo. I am praying for you and your precious precious angel!!

  22. I’d just like to pray for Phoebe… Cancer I rebuke you in Jesus’ name. I come against you with the blood of the Lamb that speaks a better word. I come against you lying spirit that strikes fear in hearts and I rebuke you now in Jesus’ name. You have no authority. I cancel your assignment of terror and oppression right now. All authority on heaven and on earth has been given to Jesus Christ and His fullness dwells in us, His Body. We speak in agreement together now as His ambassadors and as His representatives in this world… go! Thankyou Father… Thankyou Lord.. Thankyou for life and life abundantly. The enemy comes only to steal kill and destroy, but you come to give live and life abundantly. Thankyou Lord. I just pray a blanket of peace to cover the family and I pray Your faith Lord to rise up in them so that they do not look upon what they see as their fight or their terror, but that they rest with an inexplicable knowing of who you are and what you have done at the Cross and what is coming now because of it. I pray a deep awareness of God’s richest blessings upon you Amey and on your family in Jesus Christ. Much much love. (It is written: “I believed; therefore I have spoken.” Since we have that same spirit of faith, we also believe and therefore speak, — 2 Cor. 4:13)

  23. praying with you for an atypical miracle.
    praying for all the family as you hold fast to the One who loves you.
    thank you for sharing this inspirational video diary of Phoebe’s life.
    blessings to you from Elizabeth, part of your worldwide YWAM family

  24. This video of Phoebe is truly amazing! I have recently started following her story on Facebook and continue to check in for updates. I said a prayer again for her tonight ❤ she is truly a miracle, a beautiful little girl!

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