Jul25

Red, White and Blue Phoebe

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Phoebe falls asleep during her pre-surgical work up this morning (for her MRI tomorrow)

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Filed under Uncategorized | 13 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

13 responses »

  2. Thanks so much for your continued updates and photos. The video you did was amazing- emotional and joyful! I continue to think of you often.

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  3. Praying the MRI goes well and is void of any new cancer growths. The photo is Phoebe is so sweet.
    God Bless you all. Marilyn

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  7. Such a PRECIOUS picture!! She is to cute in that outfit!
    PRAYING for ALL of you and Phoebe’s care team that all will be perfectly CLEAR tomorrow!
    Love & HUGS
    Peggy

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  10. Praying in confident hope that Phoebe’s results are clear, and that our Lord continues to deliver complete healing for her.

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  12. We have been praying since the beginning, we continue to pray in the knowledge, belief, trust and love in the almighty Creator in the hope He gives us in all things. Phoebelicious is and always will continue to be a blessing to all who have been touched by her precious life and witness thru everything. We love you lots! your family of God in Hawaii,

    Reply ↓

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