A Phoebelicious Celebration

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On August 16, 2009 my most treasured girl made her entrance into our lives in a little birth center in Zapopan, Guadalajara-Mexico. Tomorrow we will celebrate her 4th birthday. From 3-6pm at our home we will have a come and go visit/party f…or Phoebelicious. If you want to come and wish her a happy birthday, please feel welcome. HOWEVER, if you are sick, or your children are sick, please refrain from coming to visit. We will have snacks and cake and fun stuff for kids. In lieu of gifts, we request that you donate to the ‘Cure AT/RT Now’ Research fund to support research for Phoebe’s type of cancer @ http://www.cureatrt.org/index.html 

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

29 responses »

  1. Dear Amey, I am so glad to hear Phoebe will be having a major celebration tomorrow! How I wish I could come by and meet you all and give her something sparkly and fun! I love her. I started following yall from the beginning via Tiffany Hinton. I used to live in Tyler but now in South Florida. I hope tomorrow’s party is even better than you guys plan for. I am praying you guys all the way through during this time. ~Marci

    • Please see the link below to purchase a Phoebe Fair T-shirt that a church is doing as a fundraiser. All proceeds go to the Fair family.

      They are 50/50% cotton/polyester blend. Available sizes are S, M, L, XL & 2X. We do have a few child sizes available also.
      The shirts are $15 shipping and handling included

      http://www.lifepointworshipcentre.org
      and click on SHOP where you will find the Phoebe shirt and you can pay with PayPal. Please place the size in “Special Instructions to seller” on the pay page.

  2. Oh how I wish I could be there to meet the great Phoebster! My prayers and heart will always be with her and the whole Fair family.

  3. I like many others have been following Phoebe through her parents posts but I have never posted anything myself before. I feel so connected to her by reading the stories of trails and tribulations that she has gone through. I pray for her daily and just hope that all her days will be comfortable for her and memorable for her family. Being a Grandma of 5 and Great Grandma of 3, I just want to reach out and hug her, so please do so for me. May God Bless you all.
    Blessings
    Janet

  4. I would love to attend Phoebe’s party for a short time. I know you want to donations of which one will be made on behalf of my grandchildren, but would it be OK to bring balloons? Also I would need your address. I have been following her ups and downs all along. I have 4 granddaughters 9, 6, 5 and 3 and a grandson who is 13. My prayers go out to your family daily and know that God can perform miracles. Look forward to meeting the infamous Phoebe. Our whole church and all of my facebook friends have a prayer chain continuing for Phoebe. Darlene

    ________________________________

  5. Amey…we will be with y’all in spirit. We love you and we continue to pray for all of you. Kiss that precious girl for us and know that we send our blessings to Phoebe. God bless you… Tammie Derril and the kids

  6. WHERE ARE YOU LOCATED? I WOULD LOVE TO JOIN BUT I’M SURE THAT YOU ARE NOT CLOSE TO OHIO. WOULD IT BE OKAY TO SEND PHOEBE A GIFT? IF SO I WOULD LOVE TO SEND HER SOME BIRTHDAY WISHES.

  7. Hi Amey, Please give Miss Phoebe a gynormous hug from California. We love you guys and are lifting you up in prayer. My daughter, Rebecca, sends Phoebe a sweet bday kiss. Praying she has a wonderful birthday bash!! Lots of love — The Graham Family

  8. We hope Phoebe has an amazing celebration! Do you need us to have any kind of food delivered pizza or whatever you all would like? We live in California but would love to send our cheer…

  9. Your precious family is being lifted in prayer by SO many. Thank you for sharing Phoebe’s story with us, so we can laugh with, cry with and especially pray with you all. I hope Phoebe’s birthday bash tomorrow is a wonderful time! Hugs from Virginia!

  10. Delivered in staccato ~ with a lilt:
    Hap-py Birth-day to you-u-u,
    Hap-py Birth-day to you!
    Hap-py Birth-day, dear Phoe-be……
    God’s Bless-ings on YOU!!!

    Love from Austin, Joan <

  11. Have a wonderful celebration -blessings for sharing Phoebes birthday with us Love and blessings to all your family-sending my love and prayers from Kansas city,Kansas.

  12. Birthday wishes to little darling Phoebe from John and Betty’s next door neighbors, Yvonne and John. Prayers for all for a wonderful day.

  13. Happy Birthday, Phoebe!! Our family lost our precious daughter, the baby of the family, a little over 4 months ago from brain cancer. Hannah’s fight was short, less than 24 hours from diagnosis to death. While we don’t understand the long fight you must endure, we understand the peace God can provide through deep valleys. If there is anything we can do, please let us know. We are missionaries in Kenya, so please tell Phoebe HAPPY BIRTHDAY from her prayer warriors from Tenwek Hospital!!

  14. Happy Happy Birthday sweet Phoebe! I feel like you are my own as I have followed your story from Baton Rouge, Louisiana from day 1! You are a beautiful little girl who has touched so many! Praying for strength and peace for you and your family! You are remembered daily in my prayers and those of my family!!
    Jamie Pellegrin

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