Phoebe’s Birthday Celebration

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Below is a link to a local NBC news report about Phoebe and her birthday:
http://www.ketknbc.com/news/east-texas-girl-fights-rare-cancer

Phoebe’s birthday party was more than I could have ever hoped for. It was so perfect and Phoebe soaked in every bit of love and attention. I have no idea how to begin to thank all the individuals from our church and local ministries that made this last minute birthday so special.
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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

21 responses »

  1. Praise God for all that helped make this a spectacular day for Phoebe! The look on her face in your pictures says it all,, I am so very happy that she had such a wonderful party. My prayers continue for her and for all of you as this journey continues. God’s peace and blessings to you all.

    COLE Prayer Team
    Debby Mooney

  2. Looks like she had a blast! Thank you Jesus! I’m so glad she had a great time. I have a great-nephew that had open heart surgery a couple of days after he was born. He’s now almost 4 months old. I pray that God will touch his little heart so the next surgery won’t be necessary. I pray the same for sweet Phoebe. That God will touch her head & spine with just 1 finger & she will be instantly healed. I will believe it everyday. If it is in His will, then it will surely happen & God will get all the glory. She’s very blessed to have such wonderful parents. God bless you all, Elaine Sellers

  3. Thanks for sharing Phoebe’s birthday with us! The pictures are delightful, and the joyful expressions on her face show how much fun she had! Praying for Phoebe and her loving family.

  4. Showed Phoebe’s party to Lake Chapala Baptist Church today. You continue to bless us. Bob used you as an example of what it means to be filled by the Spirit. Not necessarily dancing, jumping, ecstatic life. But a life that says, “It’s all to honor God. If God is honored, we have succeeded.”

  5. What a wonderful celebration for Phoebe’ s birthday!! Thanks for sharing the beautiful pictures. Happy Birthday Phoebe:)

  6. Hip hip hooray! Glad Phoebe and y’all had so much fun with family and friends. Prayers for continued joy and for healing.

  7. Yay for Phoebe! Happy Birthday girl!!! So happy you had a fabulous day! We are praying for you here in California and painting our nails in celebration of you Phoebe!

  8. OH PHOEBE I AM SO VERY HAPPY YOU HAD SUCH A WONDERFUL BIRTHDAY. YOU WERE ALL SMILES WARMED MY HEART. I KNOW EVERYONE THERE ENJOYED YOUR PARTY TOO. SENDING YOU LOTS OF LOVE AND PRAYERS GOD BLESS YOU AND THOSE THE LOVE YOU

  9. Dear Amey and Nathan, I hope all is well. Happy Birthday sweet Phoebe. My parents, myself and my entire family that lives here and in Brazil are sending tons of blessings, peace, joy and love.
    how much I wished I was there. I love hello kitty too. 🙂 and been from Brazil, we love family and big celebrations. So wow, what a great celebrations.

    I am deeply sorry we missed but my parents and I would love to go visit Phoebe and you all. Please let me know by text or email.

    Priscilla from Fort Worth.

    To a blessing now. Thanks for sharing the pictures with all of us.

  10. What a marvelous party, Phoebe!! ~and Amey and Nathan, thank you for the photo chronicling (Sp?) and then sharing with us who are loving you and praying for you. It’s so very special that you take the time to keep us abreast of what’s going on. What a powerful witness of faith in action!

  11. My daughter had a similar 5th birthday party–it was such a special day for all of us–unforgettable. A friend penned this when she got home from the party…

    “I have been a part of something truly wonderful.

    It is not magical, yet it is glorious.

    It is not temporary, but eternal.

    It is incredible, but believable.

    It is not always pretty, but it is exceptionally beautiful.

    It has made me cry oceans of tears, but has brought me the most REAL joy.

    It has brought me crawling to my knees, but has grown me up.

    It has brought me to a crises of faith, but has made me believe that HE IS.

    It has made me angry and sad, depressed and despairing, yet filled me with hope and peace, encouragement and strength.

    I have been a part of something truly wonderful.

    I have been a part of Anna Jane’s life.”

    I’m sure the people around you feel the same way. Praise God that when we walk through the valley of the shadow of death, HE IS THERE.

  12. We had a similar experience at our daughter’s 5th (and last) birthday party. It truly was a gift from God. Here is what one of our friends wrote after the party…

    “I have been a part of something truly wonderful.

    It is not magical, yet it is glorious.

    It is not temporary, but eternal.

    It is incredible, but believable.

    It is not always pretty, but it is exceptionally beautiful.

    It has made me cry oceans of tears, but has brought me the most REAL joy.

    It has brought me crawling to my knees, but has grown me up.

    It has brought me to a crises of faith, but has made me believe that HE IS.

    It has made me angry and sad, depressed and despairing, yet filled me with hope and peace, encouragement and strength.

    I have been a part of something truly wonderful.

    I have been a part of Anna Jane’s life.”

    I am sure the people around you feel the same way about Phoebe. Praise God that when we walk through the valley of the shadow, HE IS THERE> Phoebe is a gift of incredible, eternal value.

  13. The joy on Miss Phoebe’s face is priceless!! What a gift. Thank you, Father God, for bringing this day together! Thank you, Amey, for posting the pictures so we could share in the celebration and joy. Continuing to praying with and for you and your family. much love — Jeannie

  14. I’m glad Phoebe enjoyed her party, she looks so happy. I came onto her page late, so I had a lot of catching up to do. Yesterday I finished reading your entire blog. Your faith in God and your strength, and Nathan’s, is incredible. I can see why God chose you as Phoebe’s parents. You have been such an inspiration to me, and after reading this blog, even though I don’t know any of you personally, I feel that I do! You have helped me with my relationship with my God, and I pray daily for this dear sweet little girl and all her family. God Bless you all.

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