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All things considered, Phoebe is doing very well, just headaches and some swelling from steroids (and ice cream). Please continue to pray for her healing and comfort.

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

16 responses »

  1. Continually praying for miracles, patience and your entire family!

    Sent from my iPhone Cheri Perry 1-888-249-9919 You can get everything in life you want if you just help enough other people get what they want. ~Zig Ziglar 1927-2012 Rest in Peace dear friend!

  2. Dearly Beloved Phoebe, Praying not only for your complete healing and restoration, your comfort during this season, and the shared love among all your family, but I hope you are getting outside in the cool times of day to smell the sweet smells of summer, hear the birds in the morning and the katydids in the heat of the afternoon! Can you see the moon through your window? Its just come through the phase my mother called the ‘fingernail of God’.

  3. Amey, keeping you in my thoughts and prayers. No parent should have to see their child go through this. Hugs from the Garcia family.

  4. Hooray for ice cream, the best way to beat the heat. Prayers for grace in every day, for pain to disappear, and for healing for Phoebe. Thank you for the update and the photo of your sweet girl.

  5. I just heard this beautiful song written by Audrey Assad for a little girl battling metastatic brain cancer. I immediately thought of Phoebe. You may have heard it before, but if not, I encourage you to listen. It’s so beautiful. It’s called “Little Light”.

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