Spent the day in Dallas. Phoebe had an appointment and had to get fluids and IV antibiotics for her UTI. This is the same medicine that damaged her kidneys in January, but the only one that will be effective in knocking out the infection. We have some difficult decisions to make over the weekend..praying for guidance. She has had 2 great days in a row, and THAT is a gift



About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

23 responses »

  1. So precious! Praying for bunches of more good days and for God’s full assurance that your decisions are His decisions. You are all loved by many who will never meet you until we meet in heaven. May you know that you have and continue to touch and encourage us. I can empathize with your sorrows and joys for lots of reasons.

    Gratefully His, Debby

    Sent from my iPhone

  2. Amey- been thinking of you and your journey a lot today! Thank you for having the strength and the faith to share openly, expose your vulnerability and allow us to walk this journey with you. May God’s love permeate your soul as you spend this precious time with your family.

    Cheri Perry

    You can get everything in life you want if you just help enough other people get what they want. -Zig Ziglar

  3. What a ray of sunshine! ~or a puddle of melted butter sitting in an orange ramekin!
    ~or the most precious King’s kid in the whole wide world!

  4. Phoebe is so beautiful! I pray that she has more great, grace-filled days with y’all. May the Holy Spirit shower you with guidance and serenity. Steadfast prayers that the medicine works without side effects too.

  5. She’s so beautiful. I am praying that God will give you the wisdom to make the right choices for Phoebe. Very glad that she had 2 good days in a row & I hope she has many more. Love & blessings, Elaine Sellers

  6. My verse for the year is appropriate for you guys as you continue to trust Him: James 1:5 “If any of you lacks wisdom, he should ask God who gives generously to all without finding fault and it will be given to him.”

    Believing God with you that He WILL give you all the wisdom you need!

  7. Hey Phoebe! My name is Danielle. I am 11 years old. My family and I are praying for you! I heard that you had a really cool birthday party! I even saw some pictures of all the fun stuff you did. You’re becoming pretty famous. You were even on the news! You are such a beautiful little girl. God loves you so much! God sure has trusted you and your family with some pretty tough things. It’s neat to see how you and your family are working through it together. People all over the world are praying for you! You have been such a witness and encouragement to me and people all over the world.

  8. Phoebe looks like a baby gap model. Always looking so cute and her face it is just adorable.
    Much love and blessings. We are praying for you, little Phoebe, every day.
    We love you.

  9. I am at Children’s often . I Pray for your beautiful girl everyday. That May mean nothing, but words cannot even begin to express what your journey means to me. I wish Amy, that I could hold you simply to break down before the KING, and I too Yank at the Hem of His garment!

    I am amazed at how you present youself vía your blog and pray Pray Pray for your heart’s Desire to be fulfilled. I could not be you in the least and ask God for HIS goodness to overwhelm you and Your family in many many miraculous ways for your perseverance.

    Your heart is before the throne of the Almighty.


  10. Amie – I am part of Phoebe’s extended prayer team. Our paths may not ever cross, but our prayers bissect continuously. I don’t know how best to reach you but want to share the following: Anne’s Hands – if you like – will make plater casts morphed into bronze molds of Phoebe’s hand(s). Anne is a dear friend and neighbor who started this ministry when she became a Hospice volunteer. There is a cost to do this but if it’s something you and Nathan want, I will pay Anne in full. Phoebe could be praying with her hands or holding a special toy — maybe even holding your hand……. who am I to say. Here is how to reach Anne: 214.726.9727 or anne.art1@me.com. Just tell Anne that Roxanne is why you are contacting her; she will know who you are. If this is something you want to do, just tell Anne everything you want — every detail — and she will know the bill goes to me. Holding you in admiration, love, and always in prayer — Roxanne Hunsicker roxannehunsicker@aol.com 972.322.4830

  11. Morning, Amey — Psalm 46:1-2 says, “God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear. . .” praying that you and Nathan are finding shelter in His refuge and strength. That you are able to see Him in all your decisions and to not fear. He will guide and direct you and you can rest in Him. Please give Miss Phoebe a hug from us. . .we continue to pray with you and for you. Thank you Lord for the 2 back to back good days!

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