Sep20

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No time to write tonight, but just wanted to let everyone know SHE’S HOME!

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

33 responses »

  10. Home is the perfect place to be. I’m so happy for all of you and i am praying for many moments of joy and laughter for Phoebe and her family.

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  14. Praise Jesus, so thankful she’s at home. Even though she’s treated like royalty and is probably comfortable being at the hospital by now, there is NOTHING like being at home where your Mommy, Daddy and brothers can give her all the love, attention, hugs, kisses….just can soak her up and let her “feel” what HOME is for a while. God bless your precious family, praying daily for each of you. I know that I PERSONALLY could not show the strength, stability, compassion that your family has and continues to show…I just know your family is one to be modeled by if finding themself in this type of situation. Your trust in God to take care of your baby in His way and in His time is amazing and one can only pray to show close to the same. We all love your family…..

    Dearest God,
    Please continue to embrace the Fair family and especially their amazing little, precious and beautiful baby girl that the world has grown to love so much. Please give them peace, give them strength, give them understanding to go through whatever’s ahead of them, and I pray that be complete healing, but Your will be done for good.
    Amen ❤

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  15. The skys have opened and pouring over all of us here in Texas! (coincedence? i think not) Blessings from heaven. Comforts of home, nothing like it!!!!
    Joy

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  19. Praise God! I am so glad Phoebe is home with all of you. Although I have never met Phoebe or your family, you are in my thoughts and prayers often throughout each and every day. Your faithfulness is such a testimony to God and those who have heard your story. You are amazing! I am praying for complete peace and comfort. May God’s endless love and grace surround each of you and His merciful touch help to ease any pain Phoebe experiences.
    With love from Breckenridge,
    Suzie

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  20. Awesome news which brings great joy to all of our hearts!! Praying for sweet family time!! And agreeing with what Leah posted above. . .your witness is tremendous and has taken me to a deeper understanding of what it means to Walk by Faith and Not by Sight. God is already using this in my home and encouraging me with your testimony.

    Sending hugs for each one of you and praying God’s continued blessings. Leaning in with an expectant heart and continuing to asking for His miracles for Phoebe and your family.

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  21. Praising God that she is safe and whole in the arms of Jesus! Just honored that I got the chance to meet your sweet family at Lighthouse this past summer! Phoebe did make me smile and fall in love with her! She will be missed here on earth but what a blessing she will be in heaven!

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  24. PRAISING GOD FOR HIS GRACE AND MERCY UPON ALL OF YOU! Oh LORD, You are soooo good to Your people!!! Thank you JESUS from the bottom of our hearts. I pray PEACE, COMFORT and HEALING upon this precious family and ask LORD that You continue to hold them close to Your heart. In JESUS’ name we REJOICE and GIVE THANKS!!!!!! Amen

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  28. Oh, dear Fair family: When I read the title of this new post, I leaped for joy, and out of my mouth (by way of my heart) came OH, YES!!!!!
    You are a very special family, Nathan and Amey and little ‘big’ brothers…you are all destined for something very great given what you’re walking through with such strong faith.

    Our Pastor’s wife passed this out to us this week: IF THE ENEMY KNEW WHAT I’D BE AFTER THE STORM, HE WOULD’VE LEFT ME ALONE.

    Rejoicing with you and praising God for Phoebe’s healing and total restoration.

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  30. Praying that you are enjoying each moment with Phoebe home and that your hearts are full of laughter today! Joy, unspeakable joy.

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  31. All praise and thanksgiving to Christ Jesus for bringing her home. Faithful prayers for comfort and peace for all of you as you are surrounded by Phoebe’s shining light. Prayers for complete healing for Phoebe!!!

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  33. As our family prayedbfor ya’ll this week l… we received the word about Abraham taking Isaac to be sacrified… we prayed that work over ya’ll believing that you have acted out in obedience jist like Abraham and that God has already provided the lamb in Christ… not sure what it might all mean but we prayed in obedience and I write in obedience… you are all awesome and we reapect you so much… blessings…

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