We have been enjoying the past few days and getting settled in back at home. It’s hard to believe we are where we are considering how certain it seemed that Phoebe was leaving us last week. It’s incredible the way she turned around and we are savoring this time.
Unfortunately, our little fuzzy-headed girl is bald again. She had an atypical (go figure) response to a Phase III trial drug that we administered for a week that has shown promise in slowing down tumor growth. It was supposed to be pretty benign regarding side-effects, but Phoebe’s counts plummeted and she contracted the stomach virus and then lost her hair. And she could care less. As a matter of fact, she had fun pulling it out and Nathan videoed the whole 10 minute long event. That girl. She’s unstoppable. Hair shmare.
It was an emotional week, but bringing her home again has been such a blessing. She is weepy at times and is having some pretty difficult neuropathy pain, but on the whole she is doing very well. We have decorated the house for fall, and started back up with school, and we have been enjoying the cool mornings on the front porch drinking coffee and enjoying each other. The small things are everything. Just waking up in a body that is healthy and can move, doing school, cleaning the house, lighting a pumpkin scented candle, having a cup of hot tea, watching the boys play tackle football in the yard, having all four kids under the roof, watching a rain storm roll in…this is this stuff of life, the goodness of the Lord in the land of the living.
What a very special girl! It is wonderful to read that you are enjoying your days and all the wonderful things about fall and family. Praying and praying for Phoebe, your family and 100% health here on earth.
She is so amazing and so Phoebe-licious in every way!! Is she still at home? I have a special treat coming her way, should arrive in Lindale tomorrow. I hope she loves it as much as I did making it for her.
All my love and many, many Blessings,
Bless her, little precious one! Such spirit!!! Sounds like you are lovers of the Fall season, as am I…enjoy!!!
You are AWESOME, Phoebe! I have friends in a lot of states that are praying for you and your family. They write me when they don’t get updates… and ask me if I have heard from you! They all rejoice in your good days…and we cry when things aren’t good for you! GOD does love you, Phoebe… and YOU are teaching all of us how we should be!!!! Enjoy your family, sweet Phoebe… they love you to the moon and back..and I know you have been blessed by them! GOD bless and keep you all! Love you, sweet girl!!!
One day at a time. She is special!
Ah Amie, what an awesome post….just LOVE it!!! I’ve been thinking of all of you so much since I knew you took Phoebe home, then not hearing from you after that. I was thinking last night “no news is good news” and I am so glad and so thankful for this wonderful wonderful post and the pictures of Phoebe. She looks GREAT!! Love the clowns too. Glad you are just enjoying the season, fall is my favorite time of year, and just enjoying your precious family time. Give Phoebe a big ole hug for me, so wish I could do it in person! Praying for you all! Love, Jana
Sorry I keep spelling your name wrong Amey…..there is a girl at my work that spells it that way. I should know better 🙂
It really is the simple pleasures of life that bring such richness and joy. So happy to hear you are all back together at home and enjoying each day God gives. Thanks so much for sharing! With love and prayers for Phoebeliscious and all of you.
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Praying for the quiet, special moments to continue for all of you with your dear sweet Phoebe! May Jesus take away ALL her pain and heal her.
Sweet Girl- such a fighter. Hanging on for a miracle!
Love the small things too. So glad she’s home with you all.
Awww such a beautiful girl! Cherish these sweet days; they’ll be locked in your heart forevermore. My warmest wishes go out to you all.
Wow!! Just as beautiful as ever!!
God Bless this precious family.
So happy to hear that y’all are at home enjoying each happy moment together. God gives us so many precious gifts each day to enjoy and so many times we are too busy or distracted to even notice what he’s doing…it’s when we are truly living in the Palm of His Hand , completely dependent on Him, that we can truly see and enjoy these precious gifts He so loving gives us….Enjoy to the fullest!! Praying for darling little Phoebe and and all of you…you are such an inspiration to me.
So adorable!!! Thank you for sharing! We have been praying for her precious Phoebe since diagnosis, and we are so thankful to hear she has bounced back. She is a gift from God and teaching us all how to live our lives for the Lord, and cherish the family He has given us. Love and prayers from VA! : )
Nathan and Amey, the very first time you brought new little Phoebe to church, her eyes looked like they do in this picture. I remember thinking how peaceful and wise she looked. I know these days must be an impossible combination of all things sweet and tough. Know that we are praying for all of you, especially the boys we adore. They are being molded by your courage and your faith and by the unstoppable grace of God. Love you all.
Thank you for blessing me!
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So sweet! Praying for a miracle daily!
Thank you for posting…
Praising God for the time we have shared and making memories for a life time. Loving Phoebe and knowing God is with her is our comfort. May He grace us with comfort in our time of need and may She flourish for her life time, with peace and knowledge of God.
prayers love and Gods Blessing to this little angel of a child and her family
Loving this time for all of you. Praying the PEACE of GOD – JESUS- is present and so real that you can touch HIM. Still reaching out for his garment for Phoebe and for you. We pray for healing even at this hour LORD. Touch this precious family and have Your way. Your will be done.
Sent a little something in the mail for your children today. You should receive it by Monday. We are so in awe of your story and how you’re letting The Lord use it to transform lives. You are an inspiration! Blessings on all of you.
The Allens, VA