We have been enjoying the past few days and getting settled in back at home. It’s hard to believe we are where we are considering how certain it seemed that Phoebe was leaving us last week. It’s incredible the way she turned around and we are savoring this time.
Unfortunately, our little fuzzy-headed girl is bald again. She had an atypical (go figure) response to a Phase III trial drug that we administered for a week that has shown promise in slowing down tumor growth. It was supposed to be pretty benign regarding side-effects, but Phoebe’s counts plummeted and she contracted the stomach virus and then lost her hair. And she could care less. As a matter of fact, she had fun pulling it out and Nathan videoed the whole 10 minute long event. That girl. She’s unstoppable. Hair shmare.
It was an emotional week, but bringing her home again has been such a blessing. She is weepy at times and is having some pretty difficult neuropathy pain, but on the whole she is doing very well. We have decorated the house for fall, and started back up with school, and we have been enjoying the cool mornings on the front porch drinking coffee and enjoying each other. The small things are everything. Just waking up in a body that is healthy and can move, doing school, cleaning the house, lighting a pumpkin scented candle, having a cup of hot tea, watching the boys play tackle football in the yard, having all four kids under the roof, watching a rain storm roll in…this is this stuff of life, the goodness of the Lord in the land of the living.