Mar17

Phoebe in Action!

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If you want a real treat, go here http://www.youtube.com/watch?v=BbuHSBcnAyQ to see my girl in all her silly glory.

This video was taken the day after we discovered she was terminal and really shows how much of a presence she was in our home and in our lives. We miss her so much.

~Amey

Filed under Uncategorized | 12 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  1. Thank you so much Amey for the glimpse into your life with Phoebe. I can’t begin to understand the loss you all feel – I know you don’t know me but I often think of you and your family and you are in my prayers. Thanks again for sharing this wonderful video

    Reply ↓

  3. That was a real treat!!!
    I love all of her videos. So many people to love on her and do her every bidding.
    What a blessed and happy child.
    LaNell

    Reply ↓

  6. Morning, Amey. .. thank you for sharing this! Beautiful girl in pink surrounded by love! Missing her with you. Love to you and a strong hug, Jeannie

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  12. Finding strength in your beautiful Phoebe’s story tonight, after finding out that my nephew has a brain tumour. You tell a beautiful, heart wrenching story. All my admiration to you all.

    Reply ↓

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