Today was a beautiful day and I enjoyed being outside of the hospital walls. Our friend Bere, who was on staff with us at YWAM Guadalajara is here visiting and we enjoyed catching up over coffee this morning. We spent the rest of the morning in lawn chairs outside watching the boys play a mean game of wiffle ball and waving to neighbors as they walked by. Everyone was outside today.
As much as I miss the farm, one of the nice things about living in a neighborhood is neighbors. They walk by with their dogs and stop to chat, some have brought food and invited our boys to play, others have even prayed with us in our driveway. Today we had a yard full of neighborhood kids jumping on our trampoline and playing baseball with the boys and it was wonderful. The boys have made good friends with a family one house over who also has 4 children matched closely in age with ours. On Thursday we will go see them perform in a play about the stations of the cross in preparation for Easter and the boys are really looking forward to that. This afternoon, as I watched their 2 year old daughter jump on the trampoline I longed desperately for Phoebe to be there with her, jumping, having fun, living life. Right now it’s hard to imagine that she was ever able to do things like that.
They are still playing catch up with Phoebe’s hydration and sodium. Her Diabetes Insipidus complicates so many things and I am constantly reminded of how incredibly intricate God’s design of the human body is. If your teeny little pituitary gland doesn’t work right, everything is out of whack; kidney function, your hormones, thyroid doesn’t work anymore, you won’t grow. If your kidneys don’t get the message to hang on to fluid via the pituitary glan, your body just dumps fluids and your salt gets all crazy and that messes with your mental status and your digestion and can give you a stroke or send you into a seizure. I really had no idea before all of this, how many things have to go perfectly in my body each day to make it function the way it does. It really is a miracle that all those things happen each day without us even thinking about them. The genius behind the human body is a testament to an inteligent designer. God’s creation is amazing.
Phoebe had an exciting day and got to ride in the wagon to the playroom. She also got a visit from her Grandad and got to sleep on him for a couple of hours which I know was special for them both. Her breathing is still labored and she still pushes her voice out when she breathes whuch they are concerned about. They tested her blood gas today and it came back fine, so we know she is oxygenating well, she’s just labored in her breathing in a way she shouldn’t be this far out from intubation. Please pray her breathing will regulate and that her sodium and dehydration issues will get in order. These two things will keep us from being released to come home.
Thank you all for praying for our girl ~ Amey